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depressed and need some uplifting.
      #358265 - 04/30/10 09:00 PM
fairleas

Reged: 05/05/09
Posts: 87
Loc: USA

It's so depressing having to deal with this. I haven't been here for a while, but it's probably because I am so irritated at having to continually deal with my stupid gut.

A few weeks ago I finally broke down and had a colonoscopy. I was scared to death about it, but it turns out that the procedure itself wasn't that bad...the prep, though, was another story! Let's just say that with my IBS-D, I did NOT need Dulcolax and magnesium citrate (but I took them anyway). The doctor said that my colon looked fine and healthy. I just got a call today and the samples he took also came back normal. So...that ruled out Crohn's and ulcers and colitis, which is a good thing.

But...the diarrhea and cramping and gas continue. I sometimes have bloating so bad I look several months pregnant. I've been following the "Eating For IBS" plan for over a year now and while it does help somewhat, I'm still taking Imodium, though not as much as before. I'm still afraid of a diarrhea attack while I'm out in public (has happened twice in the past year). I'm taking Cipro and Dicyclomine as needed when I have voluminous fluffy stool or diarrhea, but they don't seem to be doing much good. I do seem to have super-fast transit time and this appears to be some of the problem.

I guess at this point I need to have food allergy tests done to see just what I can eat and what I can't eat. I'm guessing this would involve an ELISA lab test thing. They also mentioned having a test that involves swallowing a little camera and having it take pictures of my whole insides. I'm just afraid it won't find anything either and I'm just going to be stuck with some doctor telling me this is all in my head (no, it's all in the toilet, haha).

Sigh. I guess I'm just complaining, but I really need to let this out. It's just depressing that I'm trying to watch what I eat but I'm still dealing with this stuff. I may as well have a steak and baked potato with butter and sour cream...at least then I'd be eating something I ENJOY and feeling sick, instead of sticking with boring chicken or rice and STILL being sick.

Sorry. I'm not seeking answers or advice, I'm just ranting to people that hopefully understand.


[eta: Been reading a bit on the boards. Just wanted to say that I don't "blame" Heather for the fact that I feel bad. It isn't her fault. I'm just having a hard time dealing with this right now and just needed to vent.]




--------------------
IBS-D since...well, a long time
(probiotic acidophilous, SF supplements, IBS eating plan)
my blog

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Re: depressed and need some uplifting. new
      #358271 - 05/01/10 07:13 AM
dragonfly

Reged: 05/12/08
Posts: 1088
Loc: canada


I feel your pain...you aren't alone.I have IBSD too.
Maybe upping your bread intake could help.Munch on pretzels too all day

Do you think your IBS is triggered by stress?

Hope you have a better day today.I was feeling it yesterday too and could have just bawled but today looks brighter ..even with the rain.
Sending hugs your way.
C.

--------------------
IBS-D since 1999...mostly stable..i do cheat too.Bad me.


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Re: depressed and need some uplifting. new
      #358282 - 05/01/10 05:21 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I don't know what to tell you guys.
I'm 26 and have had IBS 9 years.
I'm isolated, and depressed, and feel IBS has ruined my life.

It's ruined my hobby, bodybuilding, because how can you do good in the gym when you have so many dietary restrictions?
How can you look good with a bloated stomach?

It's ruined my ability to chill out, relax, and have fun.
No longer can I just spur of the moment, go out.
I have to pack all kinds of "special" stuff.

I can't just hang out, relax, and have a cold beer with my friends, nope.
They say with IBS you need to relax, but how are you suppsoed to chill and relax when you have to worry about taking all your meds, if you're eating the right foods, and having to avoid drinking?

The day I got IBS, in many ways, I feel, is the day my freedom and free spirit ended.
Heather says "with IBS you do not have to live isolated as a hermit" yet that is EXACTLY my experience.
I'd like to know why SHE was able to live a normal life and I can't.

--------------------
IBS-C and Bloating

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Ya know what? new
      #358284 - 05/01/10 05:38 PM
Gerikat

Reged: 06/21/09
Posts: 1285


I have listened to you for awhile now, and have tried to be as supportive as possible. I understand how distressing IBS can be, as do all here. I understand your bodybuilding goals as I used to lift and compete.

But...enough is enough. Your posts are bordering on rude and obnoxious, you beat Heather up for no reason, and you whine, whine, and whine. Grow-up!

Get this! This IS the hand you were dealt, so learn to live with it. None of us here want IBS, but it is NOT the end of the world, neither it is a death sentence.

So, you can't hang out and have a cold beer with your buds. Well, get over it. So you can't go out on the spur of the moment. Well, get over it.

Your freedom and spirit ended, as you say, the day you decided it ended. IBS did not end it...you did. Your mind is your worst enemy, from what I can tell. Stop looking at the glass half-empty, and try looking at the glass half-full.

Another thing, I doubt Heather's life is as "normal" as you think. Do you think she drinks beer? I doubt it. Do you think she does things on the "spur of the moment", without planning? I doubt it. Do you think every darn day of her life is peachy? I doubt it. The difference between you and Heather is attitude, attitude, attitude.

Grow up and stop whining. Stop worrying so much about how you look and worry more about how you feel. You really need to get a grip, because I do believe you are driving most on this board, NUTS!

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Re: Ya know what? new
      #358285 - 05/01/10 09:28 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Well, I disagree. It's not my attitude, my bad attitude comes from IBS.
Because of IBS, I am a hermit. I can't go out because what can I do?
Can't go to the beach and have fun, if you have a pregenant girth belly to hide.
Heck, can't even walk with it sometimes.

Can't have a beer and enjoy happy hour, like everybody else.
I am mad at Heather because I believed her 5 years ago when she said "you can take charge of your IBS, control symptoms, and live a normal a life."

I tried EFI, I tried Zelnorm, Rifaxmin, Amitza, Benefiber, Acadia, Acidphillus, Align, VSL 3, psychotherapy...guess what...I still get laughed at and told I have a fat stomach.

I still have consitpation.
How am I supposed to be a normal 26 year old guy and have fun, when I can't drink and have a decent stool movement?

IBS is a horrible, horrible disease, and I am just furious that I still suffer.
I am tired of not being able to relax, let loose, and have a beer.
I am tired of all the agita and packing I have to do when I travel, I am tired of acting like a geritrak old fart.

I want to let loose, but I can't, because of IBS.
And even then, even when I sacrifice my fun, I still get NO relief.

--------------------
IBS-C and Bloating

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Re: Ya know what? new
      #358291 - 05/02/10 07:42 AM
Gerikat

Reged: 06/21/09
Posts: 1285


Naturopanic, you are allowed your opinion and allowed to disagree. However, others on this board see what I see.

You play the blame game (Heather), the "poor me, why me" game, the "I can't do anything, my life sucks game", and on and on it goes.

I am trying to point out to you, that this is not helping, but only creating more pain for yourself.

I just turned 31 and share some of the same drama that you have. I work around it. When I plan to go to the beach, I pack some snacks for the trip. I wear a slimming one- piece, and no one notices the gut. I would love to wear a two-piece, but most of the time, I can't. However, there are times when I can, especially when my C is under control.

When I kick back with my girlfriends, I will have a glass of wine, but some good French bread first. My closest friends are aware of my situation, so they don't push or ask questions.

I thoroughly enjoy my life, and I refuse to let IBS run it.

When you whine and moan about your fate, it only makes it worse. No one can fix this for you. Not Heather, not doctors, etc. So, stop blaming and change your mind to view you situation differently.

I hate to point this out to you, but you had better get used to living with IBS, because it's here. Focus on the good and positive in your life, focus on what you can do, instead of what you can't do. If you don't, you are going to live a miserable existence for the rest of your life.


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Re: Ya know what? new
      #358298 - 05/02/10 02:31 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I'm a guy

1) What bathing suit can I wear?
2) What stuff, besides wine (white?) can you drink?
-Mixed spirits?
-Can you get loaded?

--------------------
IBS-C and Bloating

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Re: Ya know what? new
      #358299 - 05/02/10 02:37 PM
Bel920

Reged: 03/22/10
Posts: 80
Loc: Nevada

Wear whatever swimsuit you want - you can't let what others might think of you (and probably won't even give a second thought to, if we're being honest) dictate your life. Wear a t-shirt if you are so self-conscious that a bare chest is out of the question. Don't allow vanity to rob you of your life! Why can't you just have water with lemon when you go out with friends? It's not the alcohol that makes it fun, it's being with your friends - people who care about YOU, not what you're drinking.

--------------------
Belinda
IBS-A since 1986 (age 8)
Recently realized I could do
something about it!

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Re: Ya know what? new
      #358300 - 05/02/10 02:44 PM
Gerikat

Reged: 06/21/09
Posts: 1285


I was speaking from a woman's perspective. Why can't you wear a tee-shirt? I see guys at the beach do it all the time. I think you put way too much emphasis on your gut. People really don't give a s***, and probably don't give you anymore attention than they do anyone else. They are much too self-absorbed. I think you are waaaay too important in your own mind.

I consider myself still rather young, and when I look at a guy, there is more to it than the body. If all that counts to you is appearance, then I would hate to be the girl in your life. Come on, what are you going to do when that fades, because it does with age?

I don't like beer or hard liquor. I prefer wine. I only drink it on occasion.

My idea of fun is not getting loaded. If that is your idea of fun, then you need to change that. I realize you are young and like to hang with your friends and most likely get loaded, but you have a condition that prevents you from doing that. If you want to be in pain and misery...go right ahead, get loaded.

As far as I can see, you are making any excuse you can find, not to change your mindset and deal with your issues. Unless you change that, you are always going to look at what you can't do, and bring more misery to yourself, than already caused by the IBS.

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Re: Ya know what? new
      #358302 - 05/02/10 03:52 PM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Have you thought of switching from alcohol to medical marijuana to help manage IBS?


Massa F, Monory K. (2006): Marijuana endocannabinoids and the gastrointestinal tract. J Endocrinol Invest. 29(3 Suppl):47-57

Russo, E. B. (2004). Clinical Endocannabinoid Deficiency (CECD): Can this Concept Explain Therapeutic Benefits of Cannabis in Migraine, Fibromyalgia, Irritable Bowel Syndrome and other Treatment-Resistant Conditions? Neuroendocrinology Letters, 25(1/2), 31-39

--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: Ya know what? new
      #358303 - 05/02/10 04:09 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Yes...and I just may.
Question is, doesn't marijuna of today usually get "spiked" with LSD and isn't very dangerous as opposed to the kind 40 years ago?

--------------------
IBS-C and Bloating

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Re: Ya know what? new
      #358306 - 05/02/10 05:03 PM
dragonfly

Reged: 05/12/08
Posts: 1088
Loc: canada

I drink rum and coke once in a while.

why do you need to get loaded?That's immature.

Unless you want to wear a speedo(ugh shudder) Why not wear shorts like everyone else does.
And guys who get loaded every weekend and drink beer all the time have a bloated gut too.They still wear bathing suits.

--------------------
IBS-D since 1999...mostly stable..i do cheat too.Bad me.


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Re: depressed and need some uplifting. new
      #358310 - 05/02/10 06:36 PM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

I am sorry that you are feeling down. I have certainly been there myself many times. Do you take a SFS? How about peppermint caps or tea? I am also D and acacia is really helpful for me. Have you tried the hypno program?

I am glad to hear the the colonoscopy was ok. The prep definitely is horrible but the procedure is really no big deal. At least you can have peace of mind about what you don't have.


Hugs,

--------------------
Janey

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thanks! (i'll just reply here) new
      #358337 - 05/03/10 10:24 PM
fairleas

Reged: 05/05/09
Posts: 87
Loc: USA

I'll just reply here to everyone, since it will probably be easier that way.

I do take a SFS. I take two Fibercon before every meal and sometimes just because. I take a super acidophilus tablet I found at Walgreen's. I drink peppermint tea when I get to feeling too bad, or sometimes I have Celestial Seasoning's Tummy Mint tea.

I am starting to wonder if I might possibly have a wheat allergy. I am allergic to wheat smut, which is the dusty stuff stirred up when you harvest and store wheat, so perhaps I am allergic to eating wheat as well. I stay away from dairy, red meat, fried food, the bad kind of margarine (sorry, can't remember which kind of hydrogenated it is, but I use only the "right" kind!), and anything else that might cause me problems. For a while, I was literally consuming only bananas, white rice and the occasional plain baked chicken breast.

I try not to get down and depressed about it, but it's hard when I go out to eat with my husband and he can have a nice steak and a baked potato with butter and sour cream, and I have to get some sort of baked/grilled chicken or fish and eat my potato plain. But then I remember that the whole point is to have a nice date with him, not the food, so I try to keep it in perspective. That steak sure looks good, though...

I'll keep plugging away. (I'd LOVE to have a plug on some days!!!) Yes, there are times when I'm stuck in the bathroom crying because every time I try to get up a new wave hits. Yes, there have been times when I've sprinted to the bathroom in a store because I'm afraid I won't get there in time. Yes, I've been bleeding because I've rubbed myself raw simply because of too much D. Yes, I've taken the "backup" Imodium because I know I'm going somewhere that I can't be sure of reaching a potty in time, like one of my kids' sporting events. Yes, I get sick of it. And sometimes I vent and rant and rave and pout and cry. And then I take my SFS and get on with it.

Naturapanic...dude, I don't know what to tell you. In a way I want to smack you upside the head and tell you to grow up. But I also remember what it was like to be younger (I'm almost 41). When I was 26, I didn't look at things like I do now, even though at that time I had two kids and had been married for seven years. I was younger and I thought I knew everything and I got mad a lot quicker and about things that I really couldn't do anything about. I understand the desire to go out and have fun, and the anger when you can't do the things your friends do. It's hard, it really is.

But seriously...if your friends make fun of you because of a medical condition that you can't help having (the bloated gut being a symptom), are they really your friends? If they are the kind of people who would not understand that you have specific dietary needs, are they really the kind of people you want in your life? Why do you have to get loaded to have a good time? Just because everybody else is getting drunk? I mean, if you had diabetes, you'd have special dietary needs as well, and special meds to take, and special courses of actions to follow. Would they make fun of you then? Just what is "fun"? Because your friends or society tells you it is "fun" to go out and get drunk, that automatically makes it "fun"?

Geriatric meds...SFS have been marketed to the "older generation", but that's just slick marketing on the part of the pharmacetucal companies. Is Gatorade just for athletes? No! It's for anyone who has had problems being too hot or losing body fluids through sweating. My husband works in a foundry and he drinks Gatorade all the time. Do people assume he's an athlete? Oh no. So you gotta take SFS. Nobody is going to assume you're old. Just put them in a different bottle and take them before you go in the restaurant. Nobody has to even know. Tell yourself they're vitamins if that helps.

If I do have a wheat allergy, then I'm not going to be able to follow Heather's guideline about eating bread, at least bread made with wheat. That's not her fault. It isn't mine either. It's just how it is. No, I'm not "cured" either. Far from it. I've been following this plan for over a year now and I sometimes feel I'm still on square one. But many of the things work for me, while some of the things I have to manipulate a bit to make work, and some don't work at all. I'm still finding out what works and what don't.

You can either buck against it or deal with it, but either way you have IBS. And so do I. I have a reason to want to try and be healthy...I love my kids and my husband and I want to be healthy so I can be the best mom and wife I can be. What is your reason? You're going to have to have one better than "I want to look good" or "I don't want to take old people meds" or you're just going to be beating your head on the wall. What is it, deep down?

I'm not trying to be nasty to you, just trying to get to the root of the problem. This is a place where we can all help each other...at least, I hope it is.



--------------------
IBS-D since...well, a long time
(probiotic acidophilous, SF supplements, IBS eating plan)
my blog

Edited by fairleas (05/03/10 10:41 PM)

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Re: depressed and need some uplifting. new
      #358338 - 05/03/10 10:33 PM
fairleas

Reged: 05/05/09
Posts: 87
Loc: USA

Quote:

At least you can have peace of mind about what you don't have.




Oh yes. I self-diagnosed myself with everything under the sun. I was happy when everything showed that I had a healthy colon, but irritated that I'm still dealing with almost constant D and bloating. I guess it was a trade-off.

--------------------
IBS-D since...well, a long time
(probiotic acidophilous, SF supplements, IBS eating plan)
my blog

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Re: Well said!.Hope you are feeling better too.nt new
      #358345 - 05/04/10 05:42 AM
dragonfly

Reged: 05/12/08
Posts: 1088
Loc: canada



--------------------
IBS-D since 1999...mostly stable..i do cheat too.Bad me.


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Great post, thank you! 3 quick things that might help you... new
      #358354 - 05/04/10 10:10 AM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA

Fibercon is a very low dose of soluble fiber - you're only getting half a gram per tablet. You might try gradually increasing that to 10 or even 20 or even 30 grams per day, which would be 20 or 40 or 60 capsules. Not practical, obviously, but if you switch to a powder for the fiber you take at home, and just use the caps when you're out, that will let you get a much, much higher dose. Just increase gradually!

Try taking the probiotic every day. It needs that to work, and probiotics really can work.

The tea you're using is not medicinal strength - brew a cup of that brand with at least 3 teabags per 8 oz. water, or switch to a brand that is high volatile oil so you can use less tea and get better results. There can be a world of difference with this.

Since you're already doing these things, making some minor tweaks to them might give you a lot more bang for your buck.

XXOO
Heather

--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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Re: Great post, thank you! 3 quick things that might help you... new
      #358382 - 05/05/10 01:27 AM
fairleas

Reged: 05/05/09
Posts: 87
Loc: USA

Quote:

Fibercon is a very low dose of soluble fiber - you're only getting half a gram per tablet. You might try gradually increasing that to 10 or even 20 or even 30 grams per day, which would be 20 or 40 or 60 capsules. Not practical, obviously, but if you switch to a powder for the fiber you take at home, and just use the caps when you're out, that will let you get a much, much higher dose. Just increase gradually!




Hey, thanks for the info!

Let me ask you...what sort of powder do you recommend? I know you're undoubtedly going to recommend your Acacia powder. What about stuff that I can buy OTC that will give me the "proper" grams of SF per day? I tried Metamucil capsules, but I'm not sure they helped me a lot. Would Metamucil fiber be any better? Or maybe Citracel? Should I take these before each meal, or 3-4 times a day, whichever comes first?

Where I live, out in the boonies, it's hard to find the sort of tea that is strong enough for IBS symptoms. To get to any sort of "special" products, I have to drive at least a half-hour or more to get to a larger store. Urgh. I'll try the tripling-up on the tea bags. How much peppermint tea is recommended per bag for good results?

I want to order some stuff off the interwebs, but finances are gonna have to kick in first.

I just wanted to say thank you for all this wonderful information. I recently checked out your book again from the library and I'm going through it again. There's lots of things to remember and I'm finding stuff that I missed/misread the first/second time through. It's a bit confusing...perhaps if there were more charts, for those of us who are visually-oriented?

--------------------
IBS-D since...well, a long time
(probiotic acidophilous, SF supplements, IBS eating plan)
my blog

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Re: Great post, thank you! 3 quick things that might help you... new
      #358397 - 05/05/10 10:12 AM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA

Hi - there's a whole page on all the different types of soluble fiber supplements here Best way to take them is to divide your dose, take at least twice a day or before every meal if you can.

You'll see that it's very difficult to get any kind of decent amount of fiber with capsules. It will probably have to be a powder. And I'd avoid Metamucil and psyllium, inulin and FOS, if you can - try something that is 100% soluble, with nothing else added to it. That will be more concentrated, and thus cheaper on a gram per gram basis, and you won't risk having problems from additives in there you don't need (like citric acid, artificial flavor, color, etc.)

If you can get to any kind of shop with bulk herbs and spices, they'll have bulk peppermint leaf. It's going to be much, much stronger than the teabags you're using and also much, much cheaper. Loose tea is always less expensive than teabags. If you're stuck with the regular kind of teabags, you might have to use up to 5 per cup. I know that sounds crazy, but even then it really won't be as strong as the loose tea or as strong as medicinal strength tea bags. The difference is the grade of peppermint - you want cut and sift or whole leaf, you do not want teabag grade. But, something is better than nothing, so use what you can get. If you are happy brewing loose tea, buying that online, even with shipping costs, is going to be less expensive than buying regular grocery store teabags locally.

For some fast and easy visuals for the EFI diet info, you can download the cheat sheet here

XXOO
H

--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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Re: Great post, thank you! 3 quick things that might help you... new
      #358435 - 05/05/10 08:02 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Few things Heather

1) I have tried store bought cammelie tea...and that has NOT helped my IBS.
-What is the difference, and why would your fennel tea work better?
-Which tea should I get, fennel or peppermint?

2) I am sure you have seen my diet...do you really think
a. Tea
b. Peppermint caps

would REALLY help me?


Thank you.

--------------------
IBS-C and Bloating

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