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Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth?
      #357921 - 04/20/10 07:37 PM
Naturapanic

Reged: 02/16/06
Posts: 856


You know, what I am about to say might ruffle some people, but I've had it.
I came to this site 5 years ago as a 21 year old frustrated because despite working out in the gym, I still had a large gut and skinny bones because of IBS.

I was desperate for any help and have read, re-read, and followed Heather's advice. I tried to keep a smile and tell myself it's not cancer, but I've had it.

I am sick of the cliche expressions
Quote:

substitution not depreviation



Quote:

the happy truth is that eating safely for Irritable Bowel Syndrome does not mean deprivation, never going to restaurants, bland food, or an unhealthily limited diet. Nor does it mean living on "rabbit food" available exclusively at health food stores, or following brutal elimination diets, or keeping endless food diaries for the rest of your life.





BULL! BULL! BULL!
Do you know what a pain in the butt IBS is, has been, and continues to be?
I'm 26 years old, but I act like I am a senior citizen with all my dietary restrictions, potions, pills, and other guidelines.

I spend 5 hours a week in the gym working out, and yet despite becoming a social hermit, my IBS continues to wreak havoc on my body.

There are days were I am so bloated and distended, I look like a complete lardbutt who does nothing but drink and eat fastfood.

Yea I came to this site believing if I applied my determination I'd succeed, instead as I have been taking that IBS Survey advertised here, I realize how little progress I've made, how IBS continues to be a central theme clouding me everyday.

I see other guys my age, and they all look cut and trim. Then there is me, who doesn't drink, who diets and works hard, and what do I have to show?
I'm all work and no play...where Heather...who besides "Heather" has actually gotten stable and their life under control?

I
1) Bought YOUR books
2) Read YOUR books FOUR Years ago
3) Have tried various probiotics (Align/VSL 3/jarrowdophillus)
4) Tried various solubale fiber supplements (including your Acadia which did nothing...I now take benefiber)
5) I do not have any
redmeat, food with more than 25% calories from fat,
no whole grains, as little as possible AIs, no dairy,
no alcohol (which has destroyed my ability to freely socialize and unwind)
6) I am in psychotherapy
7) I've tried various GI and psychiatric meds

The result is in NOTHING WORKS...sure I might get SOME relief..SOME..OCCASIONAL relief, never any sustainable net improvements.

It feels like ALL the time/money and energy spent has been a waste.

I'm 26 years old, I'm resided to looking like a skinny fat kid because of IBS and having to live like I am in a test tube, except I do not have the excuse of saying I have cancer.
I wish I did have cancer, I wish I did, because it sure beats having IBS.
At least with cancer you get empathy and people understand why you are sluggish, wobbly, have a fat belly, but with IBS you're just a perfectly normal person who has no good excuse.

Worse...because of IBS I can not get my chronic muscle pain in my chest (costchondtris) treated BECAUSE NO pill besides an anti-inflamatroy exists.
IBS is interefering with my ability to get treated for other problems.
You know what I haven't tried?
I haven't tried

1) Peppermint pills
2) Yoga
3) Hypno
4) Acupuncture

You know why? BECAUSE WHY IS IT WORTHWHILE?
To me...this sounds like a RACKET.
A clueless racket...try this...try that...NOBODY has any clue or any idea on how to treat.
You have made me a 26 year old lamo with no social life and an unattractive body...I came here to get help...what difference does it make?

I ask, WHO HAS ACTUALLY stabilized from anything on here?
I am sick of bloating and distenstion.
Sure...I can try Yoga/hypno/acupuncture/peppermint...but I don't feel that the results of all the time, effort, and money spent so far warrant it.

I feel it will be a waste of time and energy, this is just more of a racket to sell an illusion.

So after 5 years of all the soluable fiber potions, probiotics, socially restrictive dietary modifications, HOW CAN YOU DARE TO CLAIM WITH IBS YOU CAN LEAVE A NORMAL, HAPPY LIFE?

I bought your book...WHERE ARE MY RESULTS?
IT HAS BEEN FIVE YEARS!!!

--------------------
IBS-C and Bloating

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357922 - 04/20/10 08:02 PM
Bel920

Reged: 03/22/10
Posts: 80
Loc: Nevada

First of all, I am sorry that you are feeling so bad and haven't had any significant improvement in the way you feel, despite your efforts. I know how incredibly frustrating IBS can be and have felt "rock bottom" many times myself.

To be fair, though, Heather has never claimed to be able to cure anyone, and I don't believe there are any false promises in any of her advice. I, for one, have had one of the best months of my life since finding Heather's books and this website. There is NO cure for IBS, and I think all of us are (painfully...pun intended) aware of this. There are only ways to help reduce the discomfort, severity and longevity of our episodes. Are you 100% sure that you have nothing else going on besides IBS? No allergies, intolerances, etc...? You told us what you don't eat, but what DO you eat? Are you posting back here because you want more advice and support, or do you just need a place to vent your frustration?



--------------------
Belinda
IBS-A since 1986 (age 8)
Recently realized I could do
something about it!

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357924 - 04/20/10 09:19 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I'm posting out frustration and also for feedback.
I'm 26, IBS restricts my ability to get treated for muscle spasms, it hinders my social life and work life.

Heather keeps making claims about how IBS can be controlled and how people can manage it, I've tried to follow HER diet for five years (I can post you a log if you'd like).

The only other option is to go shell out $$$$ to see one Heather's recommended RDs/GIs...try yoga/hypno/acupuncture...try teas...try peppermint...but after ALL I have tried it seems to be more or less a waste.

IBS refuses to get better, I think Heather's quote is full of it.
I'm glad life is all well and good for her, frankly at age 26 I WISH I HAD CANCER.
I don't want to live another 50 years if it has to be with IBS.

Why would Yoga or Hypno help if a restrive diet/exercise/psychotherapy haven't?

I'm glad Heather got lucky, but the rest of us ain't so peachy.
I'm tired of spending Friday nights in because "I can't drink with IBS" and yet still looking like a fat out shape couch potatoe because "IBS causes more bloating and distension."

What Heather? What do you have to say?
Try 10 more things, devote more hours and time??

????

--------------------
IBS-C and Bloating

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357925 - 04/20/10 09:35 PM
Bel920

Reged: 03/22/10
Posts: 80
Loc: Nevada

I really think you are unfairly laying blame with Heather here. Some people are sicker than others, some people have better results with treatment than others, but to generalize and say that you're "glad Heather got lucky, but the rest of us ain't so peachy" doesn't seem fair. I've only been around this board for a month or so, but I'm inspired by people's claims they are stable now. Hell, I'm inspired by the changes that have happened in my own body in the last few weeks. NO medical or non-medical treatment is going to work perfectly for every person who has a go at it - that's just an unfortunate fact of life. I know you are angry, but I think your anger is misdirected.

Your complaint about shelling out more money are not entirely accurate. Peppermint can be bought in bulk to make in to tea for very cheap and you can find yoga techniques and routines all over YouTube for free. Why not give those a shot? What have you got to lose?

--------------------
Belinda
IBS-A since 1986 (age 8)
Recently realized I could do
something about it!

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357928 - 04/21/10 01:28 AM
Zara

Reged: 06/07/06
Posts: 883


Hi Naturapanic, I don't post here as much anymore but I couldn't not to when I read your post. I feel your pain and frustration, I've been/am there, too. I started realizing my problems when I was about 21 (got worse around that time, too). I was like you when you were that age (I'm 30 now) - active, slim, with a bloated stomach. I know what it's like when you just don't feel good about your body. People would tell me stuff like "oh, you have such beautiful long legs", or "you're so skinny, whatever you put on looks good" - but noone knew that I was constantly hiding my gut because it was sticking out so much! I wanted to have a flat stomach, abs to show off...I felt like I deserved it because I ate healthy, excercised....I think those talks about how we shouldn't be vain and care about how we look are all bull, because who in their 20s (and later) doesn't want to look good, right?

I hated how I couldn't eat what everyone else ate when at a party, or even in the school caffeteria....I didn't want to drink much because I was scared (and actually certain things such as wine - even the good quality stuff - makes me suffer later), and while everyone was having a good time, I was getting bloated, I was in pain, gassy, and just wanted to go somewhere alone where I could lay down and relax...IBS definitely took a toll on my social life.

You cannot relate to this part but I wanted to share anyway, I'm pregnant now and I finally feel good! I'm more or less managing and pain, and who cares about bloating now? Now everyone wants to see my tummy! I can finally wear what's comfortable, I can wear fitting tops and the bigger I look, the better. Obviously this will pass but I'm enjoying it while it lasts.

But this just shows how important it is that we feel good about ourselves, and how much IBS can affect our lives psychologically.

Now I know you're frustrated, and I don't think you're really mad at Heather, I just think you're mad at the whole IBS in general. The diet probably worked for Heather as it is because while it might be a good place to start, it needs some personal tweaking. Someone who's IBS means diarrhea and no bloating needs a slightly different approach than someone with lots of bloating and constipation. Some people swear by yoga but I don't think it'd help me. I'm active enough, and I hate yoga, tried it a couple times and it didn't work. Hypno CDs didn't work for me, either. I'm sure they've helpled others but one size doesn't fit all.

I've never wished for cancer but every time I'd gone to the doctor's I was praying they'd find "something". I was so happy when I leardned about different intollerancies and celiacs! I was convinced I had one of these, that I would just cut something out and that'd be it. Yeah, right...healthy as a horse. Except for this damn IBS.

Honestly, I don't think there's a cure. I think there's a "stable" place, although that means different things to everyone else. But just realizing this made me feel better. People have various health problems; I have IBS. Sucks. But I can't do anything about it so I have to manage it the best way I can.

Right now I don't take supplements (well I do take Mg before bed but that's it), and I don't really exclude any food groups from my diet (meaning I don't eat fast food, lots of processed food, etc. but I don't obcess about gluten, small amounts of dairy, etc. in my food). I hated how every morning, I would start with a glass of metamucil/citrucel/benefiber, then wait for a bm that wouldn't happen, then force myself to eat a bowl of oatmeal with flax seed (I like oatmeal once in a while but not every morning, I often felt like something else but was afraid to eat anything else), not go out with my colleagues for lunch but eat at my desk, felt guilty about a cookie in the afternoon, refused a birthday cake at the office, rushed to the gym right after work......and didn't feel better! And felt much worse mentally, like I was trying everything, cooked special meals (gluten free, dairy free, low this and that....), food was always on my mind and it wasn't working!

So I decided to just deal with it and I've felt much better since. I eat wheat, I do eat things from Heather's no-no list (coffee, dairy - this is why I don't post much anymore, lol). I am sticking to the basic general idea, soluble fiber base is the key for me, eating a large salad for lunch with nothing else would kill me, I don't eat much red meat or fried, greasy stuff...and when I slip and eat potato chips, I pay later. Then again, I "paid" when I was eating dry rice cakes, too, so go figure. I'm enjoying life again. Of course, I do get frustrated sometimes, I cry and vent to my husband. It's all a part of it.

I've been following this girl Kim at www.eatandbe.com. She has IBS-C, bloating, just like me. She's managing it pretty well but still has problems sometimes. See for yourself but she's really inspired me.

I just wanted to say that you're not alone.

--------------------
IBS-C, bloating, cramps
pregnant

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357930 - 04/21/10 08:09 AM
dragonfly

Reged: 05/12/08
Posts: 1088
Loc: canada

I feel for you and I really feel for anyone who deals with IBSC.
It is so much harder to deal with that than IBSD,which I am.
Yes I totally stabilized with this diet.I go through spells where I am fine and can eat or drink whatever but...and here's the key...when in times of stress where you are more prone to eat junk food to make you feel better...the key word is stress...I totally relapse and have symptoms again.

This is my theory on IBS and you can take it as you like.It may help it may not.

I don't think it is food related.I think it a combination of all the chemicals put into our environment,food,air,soil,water that has destroyed our bodies.
Combine that with stressful situations and emotional trauma that you may THINK you handle well but the body has other ideas.

So we have destroyed out bodies by filling it with chemicals and in turn our systems can't handle what life throws at us.

My opinion .

Things like yoga and relaxation cds or hypno cds are just a way for you to get back to listening to your body,calming it down so it can deal with ..life.

So what do you do now?
Its trial and error isn't it.Obviously what you are doing isn't helping you.So read what others do and try it on.Give it time.It's so easy to be angry at the word because you should be enjoying life at this age but even that stress adds to your problems.

Remember that everyone has some type of food they can't eat.healthy or otherwise.
Every person that has cancer is treated differently because no two people react the same way to the same treatment.

I can't give any tips because I don't know what to do about IBSC but I have friends who struggle with it .Even my daughter has bowels issues and has to take benefiber everyday....she is 7...how about that?

I hope you can find help and that may not be here but don't give up!You WILL find what works for you.

HTH

Chris


--------------------
IBS-D since 1999...mostly stable..i do cheat too.Bad me.


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Recovery is tough ... new
      #357933 - 04/21/10 10:16 AM
Double J

Reged: 03/09/06
Posts: 900
Loc: High Rocky Mountains ibs-d

Naturapanic … first young brother, I am sorry your having such a rough time. It really is not easy.

I would put my arms around you and hug you if I could … just to lift some of your load.

Yes, I've recovered from ibs … just like I recovered from being a drug addict.
I stay away from those things, and practices that would halt both of my "recoveries". Both are still ongoing recoveries and will be forever.

Learn to live with that.

But what are the choices … I could be sitting on a toilet for 16 hours, or waking up in an emergency room with a heart out of rhythm, or getting stitches because I thought I was superman … again.

My ibs and yours … and my drug recovery are livable if managed correctly.
Yup… Good and bad days all the time.

And yes, I am a senior (broken and beaten up a bit), but when my grandchildren come over I can run and play with them … get down on the floor with them, throw snowballs, or ride a horse without messing my pants… or worry about scaring them because my brains are frying.

Have you really been taking care of yourself? Physically and mentally…

Ask yourself that question.
Set down in your most comfortable chair and ask that question again. And again…

Make notes … make a plan. Make it better…

It's your life and no one else is responsible.

Time to take control and make it better.

Easy … it never will be. But worth it forever though..

How? Listen to Heather and others here and practice what they teach.
Is it going to happen over night … no.
5 years… no.

Recovery is on going … it's forever.

Time to start.


--------------------
Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow”. Mary Anne Radmacher

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what an uplifting post Double J-nt new
      #357937 - 04/21/10 01:13 PM
jhuggs

Reged: 03/18/09
Posts: 88
Loc: Erie, PA



--------------------
IBS-D & bloating.

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357942 - 04/21/10 03:20 PM
Gerikat

Reged: 06/21/09
Posts: 1285


What you have to say does not "ruffle" me, but saddens me. Why would you want to wish cancer upon yourself? IBS is not a death sentence, but cancer certainly could be.

I wish I had some answers for you, but I don't. I could give you some Pollyanna, count your blessings, pep-talk, but I know that would not help you. When you are angry and frustrated, and want to beat the world up for your misery, that is the last thing you want to hear.

I am constantly looking for answers, and yes, have spent much money on remedies. I am still pretty much where I was, so I do understand. I am still bloated and C, most days of my life, but I do experience the surprise D in the most inconvenient situations. Joy of joys!

However, lashing out at Heather and making her the bad guy is not your answer.

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357943 - 04/21/10 03:37 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Well Zara, what you describe is exactly how I feel (minus the pregnancy).

I'm deprived of socializing or having fun because inevitable SOMETHING diet related will get in the way.
I'm saddled with an ugly physique, which no matter how many weeks I spend 5+ hours in the gym, WILL NOT MAKE A DIFFERENCE.

It is just do discouraging, it makes you wish you had cancer. I don't feel like living another 50 years, I really don't.
It just seems nothing I do, nothing I deprieve myself of works.

I really resent Heather, because I do think she tries to sell us this notion or belief that if we put a nice positive spin on it, we'll be fine.
She makes quotes like "substitution not depreviation" or "living with IBS does not mean you can never eat out, go out, or have to be a hermit" yet despite following the EFI for FIVE YEARS that is exactly how I feel.

I feel lost, hopeless, and frankly, why they heck should I try yoga? I hate yoga, I don't feel like learning it, I'd rather spend my spare time watching TV or having fun, not devoting more time and resources to an endless lost cause.
Frankly I don't get how yoga would help, the mind body link seems to me to be code for "hey we really don't know so lets throw it in this misc category".

I'd like to see what Heather would say. Glad things worked out for her, I'm still missing out on life and not getting any better.

I feel like a retard trying to do calculus. No matter how hard I try, I just won't get it, and the tutor/instructor does not get it.

--------------------
IBS-C and Bloating

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357944 - 04/21/10 03:50 PM
Bel920

Reged: 03/22/10
Posts: 80
Loc: Nevada

You cannot expect, though, that one particular treatment plan will work for everyone. Not even the most sophisticated and well-tested medicines in the world work in EVERY patient. Heather has helped a lot of people, and for that I am grateful. Show me where she has ever said "my program is guaranteed to work for every IBS patient" and I will eat my words.

Look, I get it - I get the ruined social life, I get the feeling that nothing will work, but wallowing in your anger will not help any of that. Do you really hate yoga? Have you truly given it a chance? I recently started doing it for the first time ever and it really relaxes my whole body - it certainly can't HURT. Of COURSE I would rather be watching tv or off having fun, but if I can do something that I know might make me feel better, then I owe it to myself to give it a try - and so do you! I also get the "exercise does nothing for me" sentiments. I have a very small frame - am 5'4" and 122 lbs, yet I have the stomach of a much larger person. Coupled with "chicken legs and chicken arms", it ain't pretty. It NEVER goes away completely. You'll never catch me in a bikini - EVER - but this doesn't ruin my life. I wear a one piece! There are always other options. I have a loving husband who loves me for who I am and what my insecurities are, and you know what? The week he proposed to me was in the middle of one of the worst IBS episodes I have ever had in my life. I was literally housebound for well over 2 weeks. Lost a semester of college and about 10 lbs because of it but I came back and rebounded, and you can too. There I stood in the bathroom of our shared apartment - unhealthy, unshowered and feeling so down and out I couldn't contemplate ever getting back to even half "normal", but he saw through that and knew that this too would pass.

You too are worth having on the planet and I am sure you have plenty of people who love you despite your condition. Are you close with your family? Do they understand what you go through? What about friends? Significant other?

--------------------
Belinda
IBS-A since 1986 (age 8)
Recently realized I could do
something about it!

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357947 - 04/21/10 08:25 PM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

I feel your frustration, honestly I do. Who hasn't had to put their social life on hold because of IBS? I can't remember the last time I was able to go to a happy hour with friends. What's the point if I can't drink or eat the food? And the bloated tummy, yes, we've all been there. But I agree, lashing out at Heather is not helping you.

I HAVE stabilized. I'm not cured; there is no cure. But I've learned what I need to do to control my symptoms and lead a semi-normal life. You probably don't want to hear this but the hypno program is what did it for me. I completed the entire thing three times. THREE. Each time I saw a little more improvement. Do what you want with that information, but I swear that's what made the biggest difference. I would encourage you to give that an honest try before throwing in the towel.

I hope you'll stick with us and keep fighting, keep trying. We're always here to listen and help. Good luck to you

--------------------
~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357948 - 04/21/10 09:50 PM
sheila dawson

Reged: 03/24/04
Posts: 14
Loc: CANADA

i Just want to say, here that i thought i had found an answer to my ibs. I found a clinic in SEATTLE, where the doctor supposedly cured himself and countless others of ibs and related health problems.

i WENT there and was tested to allergies and other tests and went through a diet change for over a year.
I THOUGHT I WOULD BE CURED. I wasnt.
i suppose it was hype but i needed to believe it.
so it is manageable but no cure.

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Zara new
      #357953 - 04/22/10 06:50 AM
Cyndy

Reged: 03/05/05
Posts: 1301


Your post really reached out to me. I am very obsessed with following a gluten free, totally dairy free, very restrictive diet, but still suffer. I give everything up and read labels for every ingredient and avoid it if it contains HFCS or any type of dry milk or whey even if it's the last thing listed. I live this way and I am going insane!

How were you able to "let go"? You honestly don't feel any worse?

Congrats on your pregnancy. I hope you continue to feel this way even after the baby.

If you don't take any SFS, how do you get your soluble fiber before meals?

Quote:

I hated how every morning, I would start with a glass of metamucil/citrucel/benefiber, then wait for a bm that wouldn't happen, then force myself to eat a bowl of oatmeal with flax seed (I like oatmeal once in a while but not every morning, I often felt like something else but was afraid to eat anything else)


What do you eat now? Do you still take your flax? Are you able to go out with friends and order at a restaurant now?

Thanks for the link to Kim's website. I would love to email you sometime if that's okay. I really relate to your post! I would love to know what types of things you eat now. What kind of cereal and breads and your daily meals. If you can eat whole wheat and just how you are doing this! You are awesome! Thanks for posting.

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Lisa Marie new
      #357954 - 04/22/10 06:54 AM
Cyndy

Reged: 03/05/05
Posts: 1301


Quote:

I HAVE stabilized. I'm not cured; there is no cure. But I've learned what I need to do to control my symptoms and lead a semi-normal life.




Congratulations! How have you been able to do this? What besides the Hypno program has helped you? Do you eat white bread? Eat white rice? Take any supplements? A probiotic? I want what you have so badly.

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357960 - 04/22/10 02:09 PM
Sheeda

Reged: 05/04/08
Posts: 24
Loc: Barbados

Hey Naturapanic

I'm sorry that you are feeling so frustrated. It's hard to restrict your diet so much and still have to live with symptoms. But don't forget that the IBS diet is a lot more than the type of foods you eat. For example sometimes I don't pay as much attention to the portion size as I should, and I give myself a tummy ache that way. Also there's anxiety; if I'm stressed about about something i can have an attack no matter what I ate.
As some of the others have said, everyone is different and maybe there is a combination of practices that will help you. Maybe yoga will help, you won't know until you try. Hang in there I hope you feel better.

--------------------
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.”- Mary Anne Radmacher

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357969 - 04/23/10 06:03 AM
SeaHag

Reged: 02/24/09
Posts: 5


I first found this site about six years ago. I followed the diet and suggestions faithfully, and though there was some improvement, I don't think I was ever stable. I read a lot of posts about finding the foods that work for me. I stopped following the diet and began only using it as a guideline. Since then (four years), I have mostly good days. I don't know if that's stable or not, but at least I have my life back most of the time.

I think it's important for everyone to experiment to see what foods they personally can and cannot eat. I am IBS-D. I cannot eat oatmeal or soy AT ALL. However, I can eat corn, celery and very low-fat real cheese. I cannot take probiotics. However, two tablespoons of plain, fat-free real yogurt daily has done wonders toward improving my condition.

Finding what works for you involves a lot of trial and error, and results in a lot of bad days. But, if you're not feeling well anyway, what do you have to lose?



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Cyndy new
      #357970 - 04/23/10 06:33 AM
Zara

Reged: 06/07/06
Posts: 883


I just posted a really long reply, I don't know what it isn't on here. I didn't really post anything against the rules of this website so I have no idea why it got deleted.
I'm not going to risk trying to post again. If you want, you can email me at [deleted]. I'll be happy to talk.

--------------------
IBS-C, bloating, cramps
pregnant

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357971 - 04/23/10 07:13 AM
Allisonmary

Reged: 01/03/04
Posts: 533


I think the reason why yoga and hypnotherapy works for alot of people is becuase it causes their thoughts to slow down and their bodies to relax. If you gave them a fair chance and honestly hate doing it, of course it won't work. It will just make you more annoyed and frustrated im sure. Why not try doing more of the things you do like? I think everyone needs some activity that they enjoy so much that when they do it they just think about the activity and nothing else. I think alot of us with IBS are obsessed with our IBS and more than diet or anything else we just need to shut off out heads from all the negativity. I know I do! And just like it takes trial and error to figure out the right diet, it takes trial and error to figure out things that stress you out and things that help you. LIke for me I love doing yoga. But for some reason I only like yoga in the evenings. If I go to a class in the morning just cause I think it would be good for me, I end up not having a good day and getting like annoyed. Some days I dont feel like going to a class, I feel like doing yoga in my room. You have to find out what works for you, I think alot of it comes down to if you are happy with yourself. Im studyign chinese medicine and there was this famous book written in like 2000 BC and throughout the whole book it mentions the fact that in order to cure a person, you first have to cure the mind and the spirit, and then the body. Here in the west we are being told that it can be fixed soley through diet and I don't believe that is true. I do think though, that in order to heal your mind from the bad thoughts, it is very important to eat well and to get enough nutrients. And eventually one thing will get better and then another and you will be a new person who has a whole new perspective on life. Thats what Im hoping for anywyas! Def not there yet tho.

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357973 - 04/23/10 08:27 AM
Naturapanic

Reged: 02/16/06
Posts: 856


Look, I have tried Heather's super restrictive diet, I've monitored my diet and portion size.

You know, including Benefiber, I get maybe 20 g on average of fiber.
My only thoughts as to what I can try

1) Increasing fiber to ____ grams a day? How I do this, I do not know...since Heather's day makes getting fiber VERY hard.

2) Seeing one of the RDs/MDs Heather recommends

3) I can try Yoga/Hypno.

You know what though...I ask...how does this really help?
To me, how is spending MORE time and money to see a Heather recommened RD/MD going to help?

Maybe I am taking a one sided approach to focus on just diet and should go to yoga/hypno...then I think to myself why?
I already do psychotherapy and tried medications.
No relief.

Also...this whole mind-body thing reeks of BS.
First you tell us we have to eat like a rabbit, then if that doesn't work you say it's some vague mind-body connection...so vague it can't be disproven or articulated.

Sounds like pretty much "Hey we don't know what to do...just try this, try that, blah blah blah...we don't know if it will work or why it will," sounds like a waste of time and money.

Really...how are any of these 3 proposals above going to help at this stage?

--------------------
IBS-C and Bloating

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357974 - 04/23/10 08:30 AM
Naturapanic

Reged: 02/16/06
Posts: 856


And for all you people who have stablizied, glad for you.
I wish I and the rest of were able to.

Glad YOU got so lucky because I've been working on curing this like it's my job, and failed like I'm incompotent.

I'm glad YOU have been able to be so lucky.
I'd like to know why YOU were able to stablize when I FOLLOWED Heather's diet, have pretty much lived like a hermit, and still AM NOT STABLE.

What have I done wrong and why I AM CURSED?

What's the difference between you stable people and me?
Why has your efforts paid off and why has mine haven't?
What makes you so much more lucky and deserving?

WHAT HAVE I DONE WRONG TO NOT GET STABLE?
I FOLLOWED Heather's DIET, I get 20 grams of fiber a day...WHAT ELSE CAN I DO?

--------------------
IBS-C and Bloating

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357975 - 04/23/10 08:32 AM
Naturapanic

Reged: 02/16/06
Posts: 856


Quote:

I also get the "exercise does nothing for me" sentiments. I have a very small frame - am 5'4" and 122 lbs, yet I have the stomach of a much larger person. Coupled with "chicken legs and chicken arms", it ain't pretty. It NEVER goes away completely. You'll never catch me in a bikini - EVER - but this doesn't ruin my life. I wear a one piece!



THAT'S NOT FAIR! THAT'S NOT FAIR AT ALL. THAT'S MESSED UP!

So you're telling me that no matter how hard I diet and exercise, I am going to be stuck looking fat, bloated, and scrawny?
WHAT ON EARTH DID I DO TO DESERVE THIS?

WE SHOULD NOT ACCEPT THIS.
I came to this site thinking Heather could change it, why isn't HER methods working?

--------------------
IBS-C and Bloating

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Zara new
      #357977 - 04/23/10 08:45 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Interesting site. Thanks for the link.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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A little ancient wisdom new
      #357979 - 04/23/10 09:28 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

At least ancient in IBS Board terms.

Once upon a time there was a huge - I mean HUGE - thread on the Boards about whether Heather's approach worked for IBS-C. There were more than 100 posts in that thread but when the dust settled, Stephie and AmandaPanda had said all that needed to be said.

Anyone who is angry at Heather; anyone who has been on the Boards for 5 years (or 4 or 3 or 2) and is complaining that they're not getting relief; and anyone who believes that IBS-D is so much easier to live with than IBS-C - or vice versa - should read Stephie's post in its entirety; it's too long to quote the whole thing here.

I am going to quote the meat of AmandaPanda's very short post:

Quote:

Well I was D, and now I'm A. And let me just say, asking if D or C is better is like asking if you'd rather be burned alive or eaten by sharks. It's a silly debate. We all suffer, and nobody gets extra points for having a worse situation.

Newbies: This board is about Heather's recommendations. Try them for a few months -- I'd say 6 months minimum -- and then if they don't work, go elsewhere. That's all.




Got that? Six months. Heather has never claimed her approach works for everyone and if it's not working for you - for anyone - after six months (or 5 years), it's not going to suddenly start working tomorrow. There are lots and lots and lots of other people out there who claim to be able to fix your IBS. If what Heather suggests doesn't do it for you, try one of them.

Or as Stephie says:

Quote:

If this diet hasn't helped you, I am so very sorry. I am sorry that you are suffering and furthermore I am sorry that because this diet is the thing that helped ME that I don't have any other ideas for you. I wish that the diet was a perfect fix for everyone, but clearly it isn't. The same as anything else.

If you need to go elsewhere to try other diets and things, we aren't telling you not to. If the diet doesn't work for you, there is no reason for any of us to demand that you carry on with it... we don't get anything out of that! If you find something else that works, and hang around here for the support and some of the other ideas (exercise, herbal teas, stuff like that) then great! But please, don't get aggressive with the people who are only trying to help.




--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: Uh Has Anybody Here Actually Recovered From IBS Or Is This Just a Myth? new
      #357981 - 04/23/10 10:09 AM
belinda

Reged: 10/09/03
Posts: 474
Loc: Toronto, Ontario, Canada

IBS is very tricky to manage. There's no cure, but you can get it under control to the point where you are pain-free.

I am a guru when it comes to this. I've had IBS all of my life. I use a combined approach to controlling my IBS. Heather's diet forms the basis of that approach. However, I go further in some areas, including eating organic and stay away from most prepared foods.

For example, I would never touch Lay's Baked Potato chips! They are full of chemicals and bound to be irritating to someone with IBS. On the other hand, Kettle makes a wonderful plain baked potato chip that tastes great and contains just three ingredients -- potatoes, a little cooking oil and salt. It is very safe if you have IBS.

If you want help, please e-mail me at belinda958@yahoo.ca and I'll be happy to do what I can to get you pain-free and feeling better.

There are no magic solutions. However, you can learn to control IBS ... instead of letting it control you. My guess is you are eating things right now that you don't realize are aggravating your IBS.

I hope you feel better soon.

Belinda

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This pretty much says it all - thanks Sand. -nt- new
      #357983 - 04/23/10 11:02 AM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA



--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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