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I need some persuasive feedback from the "yes" voters as to why the science board is a good idea, and why it won't cause the problems being raised by the "no" voters.
I initially thought this was a great idea (I love science, so that's my own preference showing) but this is the very first new board suggestion in four years to get negative comments. Ever. And we've gotten a lot of them, so I'm concerned.
Please convince me this is a good idea, or I'm going to have to pass.
- H
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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I used Google to research 'gas' and found lots of scientific garbage but your site was actually useful as is.
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I enjoy the knowledge I gain from this website and the community that gathers here to share it. This website contains the broadest and the most useful information that I have found to date. The recipes, library and community of support are unequalled anywhere on the Internet.
IBS does not discriminate. It affects mothers, teachers, students, bakers .... and it affects scientists too. Heather's EFI diet, books and website bind this community together. The people in the diet, recipe, yoga, hypnosis, fitness and other rooms gather together to share other common interests that help them cope with this difficult disability. We are all looking for the same thing --- a better understanding of how to live with IBS using the EFI diet.
The science for IBS room, at least as I see, would be for those who wish to use their common language of science and technology to cope better with their IBS. Hopefully the knowledge they share maybe helpful to others. For example, if an IBS suffer reads an article in the library that they feel may be relevant and she/he wants clarification, they might drop by the science for IBS room and ask questions just as they do in other rooms. I have no doubts that those that would frequent the science for IBS room will go to rooms with questions relevant to the knowledge of the people that frequent them.
I don't believe the talk in science of IBS room would be dominated by discussions of the latest and newest drugs or treatments. I think the focus would be on more practical things such as how much salt has to be added to a cup of water to help degrade the IF in carrots. Or how can I prepare rice, potatoes and pasta to maximize a certain kind of starch (so called resistant starch) that acts like a SF after they are boiled and left to cool. Or which database provides the most reliable information about foods in the EFI diet.
Please don't think of it as a threat to the existing communities. Think of it as another resource with a different set of knowledge and skills; a community that has similar experiences with their doctors, families and friends as the rest of the communities on this website who are dealing with IBS in the way they know best.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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I voted no. I don't think it would really benefit anyone to have a science board. I don't care that a potato might have 1 gram of IF in it. It will just make some people obsess over the fibre content of every little morsel they put in their mouths. It's bad enough that some people think that IF is evil fibre and go out of their way to avoid it even though on this website and in Heather's books she say we need to have it in our diets.
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I think that since not many people are "experts" in science and such, that a lot of incorrect science will be posted. Others who don't know much about this kind of science may confuse fact with fiction. Anyway, I vote no.
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Because the IBS Research Library exists and because scientific studies and articles are included in the EFI Newsletter, it follows that there should be some place to discuss these topics. If there was a board where we could "interpret" these findings, I think there'd be fewer problems with confusing newbies and frustrating regular posters. As long as the moderator of the board is diplomatic and able to explain the studies in layman's terms, and as long as members kept those discussions within the science board, I don't see a problem.
Edited by Maria!Maria! (10/02/06 06:49 PM)
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...would have other topics besides the conversation about different types of fiber. We could ask questions about the brain-gut connection, the role of antidepressants, studies that we have participated in....lots of science oriented topics.
But is there a science to IBS? I hope so, but it sure doesn't seem to be. It seems to be so random and inconsistent. 
Thanks
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IBS-C with pain and bloat
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I voted yes, not for myself, but for some others that seem to want it. It may be a minority thing, and it may even fade out over time. I think we all learn things differently and for those that are hugely into the "scientific factors", this may make dealing with their health concerns easier.
Personally, I find it all very confusing and I don't tend to get weighed down with the various threads that have been posted.
Perhaps, if its not too difficult a room could be created on a temporary basis. This site has been most beneficial to me and I appreciate all the support I've received.
Thanks Heather 
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Life is not measured by the number of breaths we take, but by the moments that take our breath away
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for all the reasons so eloquently given here, especially by JJ, Sand and Casey.
Shawneric, who's been on the boards for as long as I can remember, brings a lot of new research to the boards yet he doesn't seem to get much in the way of questions or feedback.
As far as I know, Heather doesn't have a problem with anyone bringing up questions or comments about a newsletter or research library topic on the diet boards. If someone comes across research that they think could be relevant to the library all they have to do is email the link to Heather and she can decide if it is important enough to add.
Kandee
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I voted "maybe," though I wouldn't participate.
In your book and website information, it is made clear that you are not a scientist, but a patient/ advocate... thus I take the information you provide at that face value. OTOH, the information on your message boards, I view as completely anecdotal--nor have you claimed otherwise. All well and good.
But when someone else posts here and makes a claim to be a professional, how do you or I really know who they are, what their education is, or what their motives might be for saying what they say? Many folks are not going to take the time and energy to verify such claims (or it's impractical/impossible for the casual participant to do so), and therein lies danger.
If you're willing to "tolerate" (for lack of a better word) people presenting information here *as scientists or researchers*, I suggest you should either verify their credentials first, or put the whole discussion under a separate heading *with a disclaimer*. Then you would at least have some legal protection.
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Check multiple sources and make the best-informed decision possible!
Edited by GaiasSong (10/02/06 08:18 PM)
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