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Mickz,
Congtats on your twin babies! I will ask my doctor about Lactulose/Enulose. My main symptoms are abdominal pain and bloating. Did you have that and did the Lactulose/Enulose help with that?
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~jules
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I have a doctor appt tomorrow and no insurance. I was originally prescribed it the DAY before it was pulled and therefore never got to take it.
Now I will have to pay for it out of my pocket. Anybody have any idea about the cost? The Internet Rx sites say it's about 60 1mg tablets for $381.90. Is that right!!??! Thanks--
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Jules,
My first trimester of pregnancy was the worst. I had really bad abdominal pain. It felt almost different from what I would get with IBS-C before I was pregnant. My second and third trimesters were a lot better. However, during my pregnancy I switched from IBS-C to IBS-A. Weird! However, the Lactulose did help with the C.
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IBS-C, pain predominant
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Ok. Just thought I'd mention it because when I first started taking Zelnorm I thought I was required to take the larger dose twice a day in order for it to help my body. I didn't know that I could take a lesser dose or take the medication just as needed. 
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please check Zelnorm. The info is coming directly from the manufacturer (Novartis) and from the FDA.
Please realize that just because a drug is safe and effective for one person does not mean it is safe and effective for all (or even most) people. What works well for you might not work at all for someone else, or might cause them serious side effects. This does not mean that you should not take a drug that is working for you - it just means that you should always be aware of potential problems with any drug that you take.
Many, many drugs kill people - that doesn't stop docs from prescribing them (nor should it - aspirin kills people, but it benefits many more). You just need to fully inform yourself - and don't count on your doc for that, take responsibility yourself - so that you can weigh the pros and cons. And your decision is only relevant to you - someone else might make a different decision, to take or not take a drug, and that will be the right decision for them.
Best,
Heather
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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Quote:
Now I will have to pay for it out of my pocket. Anybody have any idea about the cost? The Internet Rx sites say it's about 60 1mg tablets for $381.90. Is that right!!??! Thanks--
OMG! Choke, gasp, wheeze!
I have no idea, but I certainly hope not. Unfortunately, though, based on the cost of some of my meds, it certainly could be. There are some programs around to help defray prescription costs - I don't really know how they work, but you could ask your doctor and/or druggist. I think one of them is run by the drug companies - I've seen some ads about how "hard working people" should get help with their drug costs.
HTH. Good luck.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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ask your doc, or better still call the drug company, about programs for providing the medication free of charge. Most drug companies will do this, but they don't advertise it (and some docs don't even know about it). Your doc may have to be the one to contact the company - their number should be on the drug insert that comes with the med, and your doc likely has some drug samples in his office. You'll fill out a form, submit to the drug company, and they'll send your doc a supply for you.
Now - I don't know if this applies to drugs that are under such heavy prescribing limitations as Lotronex. The FDA might have a say about this. But, it might not even be an issue, so you could at least look into it.
Best,
Heather
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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http://needymeds.com/
lotronex listed page:
http://www.needymeds.com/indices/brandname.shtml#M
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I saw my doc today and he whipped out the massive disclaimers and paperwork he had on joining the group who were allowed to take Lotronex. It is like they want you to sign your life away if you take it!!!  
The financial cost is also way too high for me at this point, with no paycheck or insurance. My appointment today was $75 for the visit and $90 for the Rxs (loperimide, T-3, and donnatol). He gave me some donnatol (sp?) to help with the spasms, and I'll try it to see how that goes. Thanks again to everybody for the 411! -N.
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Quote:
I saw my doc today and he whipped out the massive disclaimers and paperwork he had on joining the group who were allowed to take Lotronex. It is like they want you to sign your life away if you take it!!!
Given the problems some people have had it with, I suspect that's exactly what they want. Did they ask you to sign in blood?
(I deleted the paragraph that was originally here. I had gotten so confused about loperamide vs Lomotil and T-3 vs T-4 that there was no way for me to climb out of the hole I dug myself. Sorry.  )
Donnatol, on the other hand, really works well for me. I swear I can feel my insides relaxing when I take it. Best of all, it's only about $4 for 60 tablets - which may be part of why it's so soothing!
Take care.
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
Edited by Sand (06/05/05 06:45 AM)
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