Oprah show
#167604 - 04/06/05 11:31 AM
|
|
|
|
|
|
This may not be the right forum....but last year I sent an email to the Oprah show, asking them to do a show on IBS. I didn't hear anything back from them so I figured they had just ignored it. However today I get an email from them:
My name is Alex Castro and I'm a producer with the Oprah Winfrey show. I'm writing to you in response to the e-mail you sent us last June where you mentioned you suffer from IBS. I would like to ask you a couple of questions about your condition when you have a chance. Please call me back
at 312 633-xxxx. If you could also e-mail me a couple of pictures of yourself for my file I would really appreciate it. Looking forward to speaking with you.
Take Care,
Alejandro Castro
Associate Producer
The Oprah Winfrey Show
Do you think this is legit? I did email them, but I dont remember just when last year. Has anyone else heard from them? Any suggestions on what I should say to them? I'm not going to call back today, I'm much too busy but I think I might tomorrow. Help!! LOL
Shari
Print
Remind Me
Notify Moderator
|
|
|
I just went to Oprah.com and a future topic IS "Do you suffer from a bowel disorder?" So, it sounds like the email is legit. Here's the link to that particular Oprah topic. Wow! That would be great if she did a show about IBS!
Edited by Maria!Maria! (04/06/05 11:42 AM)
Print
Remind Me
Notify Moderator
|
|
|
That's so awesome, I have no idea if it's legit or not...but if you can get more people to be more informed about IBS, try it out!! I think that would be awesome for people to understand out problems!!! give them a call and see, or something! i think it's exciting if it's real!! get heather on it too! she could use the plug as well! oprah.....SEND US A CAR!!! lol
Print
Remind Me
Notify Moderator
|
|
|
Well, I just emailed them....
"April is IBS Awareness month, any chance you will be doing a show on it?"
lets see if I get a reply back 
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
I think this sounds fantastic. More people need to understand what IBS is- That it isn't in our heads..
I am going to check out the website....
--------------------
Melissa
Pain predominant w/occasional C.
Print
Remind Me
Notify Moderator
|
|
|
Quote:
Dear Shelley,
Thank you for your e-mail! Your message is important to us. Unfortunately, due to the volume of e-mail messages we receive every day, we cannot guarantee that you'll receive a personal response. Feel free to check out our Frequently Asked Questions for additional help.
http://www.oprah.com/tows/program/tows_prog_main.jhtml
Thanks again for writing to us!
Sincerely,
The Oprah.com Staff
www.oprah.com
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
Quote:
I just went to Oprah.com and a future topic IS "Do you suffer from a bowel disorder?" So, it sounds like the email is legit. Here's the link to that particular Oprah topic. Wow! That would be great if she did a show about IBS!
Oh, Very cool!!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
Oh my God! I am so happy! I emailed Oprah in September begging her to do a show on IBS too! Looks like they have been lobbied from a lot of sides!
--------------------
Feel the fear and do it anyway!
Print
Remind Me
Notify Moderator
|
|
|
Yes, I would call them back. I think its fabulous that they want to do a show on IBs, I just hope they get the facts right!!!! I would definately ask Heather for her permission to have Oprah's people contact her directly!!! It won't do us any good if they don't get the "real" story!! 
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
|
|
Quote:
Yes, I would call them back. I think its fabulous that they want to do a show on IBs, I just hope they get the facts right!!!! I would definately ask Heather for her permission to have Oprah's people contact her directly!!! It won't do us any good if they don't get the "real" story!!
I already emailed Heather...and she is VERY happy about this... she has also emailed several times about this topic!!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
I just checked out the site and it seems fairly secure and it says that will not share our personal info with anyone without our written consent. Here is the link again https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=D168600013. I think we should ALL take a few minutes and let them know that IBS is a REAL problem, that its NOT all in our heads and its about time the health care and pharmacutical people came up with an accpetable treatment for IBS!
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
Cool!
#167669 - 04/06/05 01:30 PM
|
|
|
|
Linz
Reged: 09/01/03
Posts: 8242
Loc: England
|
|
|
Let me know what happens and I'll try and download it! 
Print
Remind Me
Notify Moderator
|
|
|
Quote:
I just checked out the site and it seems fairly secure and it says that will not share our personal info with anyone without our written consent. Here is the link again https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=D168600013. I think we should ALL take a few minutes and let them know that IBS is a REAL problem, that its NOT all in our heads and its about time the health care and pharmacutical people came up with an accpetable treatment for IBS!
Thanks... I did send a note to them just a few mintues about....along with a link to my article that was posted in Heather's Newletter a few weeks ago. I sure hope the RIGHT info gets to them!!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
or whatever else you'd want to mention but feel you'd have to ask me about first. No worries - I'll be happy to see any good info about IBS on the show. I'm going to try and contact them, don't know what will happen, but hopefully something. 
- Heather
--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
Print
Remind Me
Notify Moderator
|
|
|
My name is Allison Schloss & I am 20 years old. I have been suffering from IBS since I was about 14 years old. I constantly missed school and doctors could not figure out why. My parents assumed I didn't like school and that was the reason I was getting so sick. After seeing about 6 or 7 doctors and going through countless tests, it was concluded that I had IBS. I was told people don't usually suffer from IBS at such a young age, but some children who dealt with a great degree of stress at an extremely young age are just prone to it. When I went off to college I became so sick and lost so much weight that I had to leave school and take a semester off. It was during that time period that I experimented with different foods and tried to figure out a somewhat steady diet that I could follow. Most of the time I was eating the completely wrong things and was getting worse and worse. Then I discovered a lady named Heather Van Vorous, and my life completely changed. I ordered her book and joined a community of other people living and coping with IBS on her website, helpforibs.com. It was amazing how nice people were in answering my many questions and to realizing I wasn't alone in this. In the fall I had transferred to a new school and I am currently a junior at the University at Albany. Although Heather's diet and books have helped me immensely, I was unable to escape the stress from my family life at home. In the past three years I have been in and out of the hospital every few months, sometimes spending a week at a time only to leave with no good news. I sometimes get so sick I can't eat or drink for days at a time and I faint. That is when it becomes time to make the trip to the hospital. I cannot tell you how frustrated I am with doctors telling me there is nothing they can do for me and that the only conclusion they can make is that I have a "really bad case of IBS." I would like to share my story to help other young people like me to realize they aren't alone.
--------------------
If you can do nothing else...smile
Print
Remind Me
Notify Moderator
|
|
|
So, a women just called me from Oprah and asked me "my story" kinda thing. She was very nice and asked me to email her a picture, apparently they want to be sure you are fit for public viewing!!! LOL!! I explained to her about this site and how frustrated we are with the doctors and that we are concerned about the RIGHT info being given and she said "oh, yes, we have several specialist coming to talk with us." Although she told me she couldn't tell me who these specialist were. She said they are taping the show a week from Monday but didn't know when it would air. I really hope they do right by us!!!
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
WOW!
#167684 - 04/06/05 03:02 PM
|
|
|
|
|
cailin
Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland
|
|
|
I am flying over to be in the audience that day, an IBS get together on Oprah, how exciting!
--------------------
S.
Print
Remind Me
Notify Moderator
|
|
|
A Lady From Oprah Show Called Me!!
I had just left my office for lunch...so she left a message with the answering service, I was paged. I called her back and left her a message... I'll let ya all know what happens!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
so exciting!!!!
--------------------
S.
Print
Remind Me
Notify Moderator
|
|
|
I'm so nervous and excited too, I hope she calls me back soon....
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
Print
Remind Me
Notify Moderator
|
|
|
Shell: I MIGHT be on OPRAH about IBS!
Shane: ????it will be all my fault 
Shell: LOL...No, I'm not going on Dr. Phil
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
TOO FUNNY!!! Good Luck! I know Michele is excited to!
--------------------
Heather7476
Print
Remind Me
Notify Moderator
|
Re: Cool!
#167726 - 04/06/05 04:51 PM
|
|
|
|
|
Mitch
Reged: 02/06/04
Posts: 170
Loc: Tucson, AZ
|
|
|
That is so cool I do hope they do a show on it. I also just wrote in so I hope the more people who write in the better a chance there will be show.
Keep us posted about this.
Michelle
--------------------
Michelle
Print
Remind Me
Notify Moderator
|
|
|
Wow this is really cool! I just read this post and decided to e-mail my story as well. I also mentioned this website and Heather's books. This would so great to get info out there and let it be known even more how many people suffer from IBS! Michele and Shell how cool that you got a response from them!!! Let's hope this really turns into something big and wonderful for us all!!!
Print
Remind Me
Notify Moderator
|
|
|
If anyone finds out when it is going to be aired, please do tell!
--------------------
~Angela
Print
Remind Me
Notify Moderator
|
|
|
Aaaaaah! That's so awesome! I can't wait for the update!
Print
Remind Me
Notify Moderator
|
|
|
That's so exciting. Can you imagine how helpful this show would be--not just to those suffering from IBS but for their friends and families as well? This would do so much for IBS awareness and understanding!
Print
Remind Me
Notify Moderator
|
|
|
The guy from Oprah called me tonight too. We talked for like 10 mins, spoke about usual stuff - whats it like to have it, how do you deal with it, how has it affected your life. I told him about Heather and her website too. He said he would be getting back in touch with me about it, said they were having some kind of meeting tomorrow. He too wanted me to send him a photo. He didn't say they were taping so soon, he didn't mention taping at all, but he did say that they were for sure doing a show on it. I'm so glad! I got the impression that they were looking for people to be on the show, but he didn't come right out and say that. I thought maybe they were looking for people to be in the audience or something, who knows? I'll be sure to post again if I hear anything back.
Shari
Print
Remind Me
Notify Moderator
|
|
|
so incredibly awesome! we need to get some ibs-D's to represent too!!
--------------------
Print
Remind Me
Notify Moderator
|
|
|
Wow, right on! It's about time!!!! :grin: :grin: :grin:
Print
Remind Me
Notify Moderator
|
|
|
This is so exciting. They should do a show to raise awareness about this condition as it affects so many people.
Please keep us all posted.
Melissa
--------------------
Melissa
Pain predominant w/occasional C.
Print
Remind Me
Notify Moderator
|
|
|
I emailed the girl I talked with yesterday on the phone with a couple of pictures. We will see what happens!! Has anyone else been contacted??
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
|
|
I left another voice mail for the lady that called me yesterday a few hours ago....but not call back yet
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
|
|
I got their autoresponse e-mail today about receiving my e-mail but no personal contact yet.
Print
Remind Me
Notify Moderator
|
|
|
I sure hope they do!! I would prefer it be Heather and/or Will on the show over me...because they just knows their stuff! But I would LOVE to be in the audience !!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
I told the girl the same thing, that if anyone deserves to be on the show it should be Heather!! 
--------------------
Taking it one day at a time.....
Print
Remind Me
Notify Moderator
|
|
|
I would love to see it!
(love the piccie - but you are TOO far away xx)
Print
Remind Me
Notify Moderator
|
|
|
who was very sweet. I'm not really sure what will come of it. It would be wonderful to have a chance to get on there and address all the dietary issues and especially to give a patient's point of view. He did mention that there will be doctors on the show but I don't know that they'll address how people can actually manage to live (successfully!) with the disorder personally.
I'll keep people posted if I hear anything else.
- H
--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
Print
Remind Me
Notify Moderator
|
|
|
Oh, Heather that is so exciting... I sure hope you make it on there!! Your are OUR "Queen of IBS Knowledge" ....
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
if thats for real that would be cool if there was a show about ibs! post if you talk to them and if they decide to have a show for the sufferers..ill totally tape it!
--------------------
VEGAN ASHLEY~IBS/C
www.myspace.com/dutchflowers
Print
Remind Me
Notify Moderator
|
|
|
is the whole audience full of folks with IBS from these message boards. How fabulous would it be for someone watching the show to see an entire studio full of people with IBS who took charge, got help, and are finally doing better? That would make such an impression on any viewer with IBS that they can feel better, too.
- H
--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
Print
Remind Me
Notify Moderator
|
|
|
Quote:
Aww...what I would love to see is the whole audience full of folks with IBS from these message boards. How fabulous would it be for someone watching the show to see an entire studio full of people with IBS who took charge, got help, and are finally doing better? That would make such an impression on any viewer with IBS that they can feel better, too.
- H
I agree with you 100% Heather!!
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
|
|
That would be amazing.
I wrote to them too, but I doubt they'll contact me 'cause I am in Canada - but maybe the response will just be another one convincing them to do the show!!
I would LOVE to be able to go and be in the audience, especially if there were people I know up on stage!!
And it's Oprah, maybe she'll buy us all houses or something, hee hee. Just kidding.
--Steph
--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
Print
Remind Me
Notify Moderator
|
|
|
That would rock and then we could all meet! Oprah's loaded, she could afford to fly us all there. I'm game!
Print
Remind Me
Notify Moderator
|
|
|
I'd love to just BE in the sudience to see the rest of you guys! (Chicago Crawl??) I'm def interested to see if they call me back.
~nelly~
Print
Remind Me
Notify Moderator
|
|
|
not all of us are doing so well.  I've been trying this diet for quit a while now, and I am in just as much pain and as symptomatic as ever. I want just want it to work for me like it has helped all you others.
Don't mean to be a party pooper, but I'm just not getting better. So I am still in the group that would be sitting in the audience feeling hopeless with my IBS. Unfortunately, there seem to be others on the board who also continue to suffer despite trying their best to do everything the diet recommends.
Are we doing something wrong? Why won't the EFI work for us?
Does this diet approach just not work for some folks?
I love these boards and all the wonderful folks here. The support has been a life-saver to me. I don't think I could handle this all alone. Unfortunately, I have had no success so far with any reduction in symptoms.
I know these boards have helped many of you, but I just wish I was one of you. Please don't kick me off for posting this downer. I need you guys! But I'm having a hard time and getting frustrated.
--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
Print
Remind Me
Notify Moderator
|
|
|
Gosh that'd be soooo nice!!!
They better do a damn good job tho!!
I want emphasis on the pain and the damage it does to your lifestyle, the need to get awareness out and NATURAL remedies to those suffering!!!!
My mom suffered with IBS for 30yrs and every Dr shrugged it off as Lactoce Intollerance, she came back complaining of the still painfull symptooms and so they said it was severe Lactoce Intolerance!!! *rollz eyes*
I also wanna move to have IBS seen as a result of C-sections so the symptoms are disccused with women to look for!!!
Grrrrr!
A chance to get the word out on Oprah is looooong overdue!
Print
Remind Me
Notify Moderator
|
|
|
Hi can anyone offer me a little advice, Ive had IBS since I was 12, im now 23 at times it has been totally debilitating when it was D based, but as I had it for such a long time I started to realise what foods affected me till I'd cut out so many foods there wasnt much left to eat, I havent eaten any fruit or veg in years and am petrified of trying new things incase it sets it all off again at the moment I live on:
white bread
crunchy oat cereal
flapjacks
Plain pasta no sauces
Fish in breadcrumbs
Vegetarian chicken style nuggets
potato's
Soya cheese slices
Dark chocoate
As you can see this is not a healthy diet but im really concerned about adding any insoluble fibre to my diet
Any advice?
Print
Remind Me
Notify Moderator
|
Re: Problem is...
#168055 - 04/07/05 02:30 PM
|
|
|
|
Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
|
|
|
I think it's so important that people see all of us, esp you, Augie!! All of us are at different parts of the cycle, and it's so important to get the word out that there are people who progress past the hopeless stage, even into the Doing Well Functioning in Society stage...! It's all trial and error and it's just sticking to Whatever Works for you for your own diet, plus the care, love and support of the rest of us in the same boat.
I hope there's a program on this and it's done well.
~nelly~
Print
Remind Me
Notify Moderator
|
|
|
me too beth!! I love this board and Heather is a very giving person and has helped lots of people - unfortunately I am not one of them and have had to go my own way...I hope this program, if it runs will be a good representation of the fact that part of the problem with IBS is the fact that there is no set treatment....
--------------------
Feel the fear and do it anyway!
Print
Remind Me
Notify Moderator
|
|
|
Thank you for your compassionate response. I hope one day I will eventually move from the hopeless stage to the Doing Well stage!  I pray so hard for that.
And yes, the love, care and support from all you others who are still struggling as well as the support from those who are doing well is what keeps me going! I love you all for that!
I also help they do this program well, and not floss over it for the "hollywood" effect. If Oprah's never experienced it herself, it might be hard for her to really "get it".
--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
Print
Remind Me
Notify Moderator
|
|
|
And Heather has been a godsend to so many, and for that I am so grateful. I haven't given up yet guys!! Hope to perhaps join you one day in the world of less severe painful and symptomatic living!
That's what makes this darn IBS demon so frustrating. Because we all have to find our own triggers/ healing foods/ treatment plans/ tolerance levels, etc.
--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
Print
Remind Me
Notify Moderator
|
|
|
I think this has been mentioned to you before but I wasn't sure. It's been a godsend for people who really felt hopeless after trying everything else. Check out the hypno message board if you have any questions.
Best,
Heather
--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
Print
Remind Me
Notify Moderator
|
|
|
I need to do this. I haven't given up yet! Just having a bad spell here. Thanks for the reminder on the hypno tapes.
Thank you for your kind words! I want you to know that I do appreciate all the work and help you have given to so many people. I thank you for this website and for your giving nature. I wouldn't be able to do this without this site. Thank you.
--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
Print
Remind Me
Notify Moderator
|
|
|
I am from the chicago area - I will surely be there - come hell or high water!!!!!!!!!!!!
Print
Remind Me
Notify Moderator
|
|
|
and being such a sweetie. Never give up! There is always another avenue to try, and always hope for (really really big) improvements.
- H
--------------------
Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
Print
Remind Me
Notify Moderator
|
|
|
I love the boards, I love Heather and the fact that she has helped so many of you but like you I'm completely lost. I feel like I've tried pretty much EVERYTHING! Well except hypno but with 3 kids to support I'm afraid that's just out of my budget
I'd also like to see a representation of the folks who feel lost and I'd also like them to see that Heather's diet is a possibility to feel better. Both sides of the coin I guess. Love to you all
--------------------
Amy
Print
Remind Me
Notify Moderator
|
|
|
Augie- You took the words right outta' my mouth.
I am having a hard time also. I am very symptomatic also- Some days worse than others. I can't pintpoint what foods cvause me grief as they say sometimes foods don't cause an "immediate" problem.
I have pain/discomfort all the time no matter what I eat. It has changed my life.
But---- I try to stay positive, although sometimes I get bummed out because I don't understand whay all of a sudden my body decided this was going to be how it is.
It is very frustrating but this board is a wonderful place to let it all out to people who understand.
Hang in there though okay- Because believe me you aren't alone- I am one of the persons who also tried the diet and didn't get any relief.
But we'll keep chuggin' along right"
Melissa
--------------------
Melissa
Pain predominant w/occasional C.
Print
Remind Me
Notify Moderator
|
Posts
