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Re: Everyone should do this!!!!! new
      #167662 - 04/06/05 01:24 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I just checked out the site and it seems fairly secure and it says that will not share our personal info with anyone without our written consent. Here is the link again https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=D168600013. I think we should ALL take a few minutes and let them know that IBS is a REAL problem, that its NOT all in our heads and its about time the health care and pharmacutical people came up with an accpetable treatment for IBS!

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Taking it one day at a time.....

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Cool! new
      #167669 - 04/06/05 01:30 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Let me know what happens and I'll try and download it!

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Re: Everyone should do this!!!!! new
      #167670 - 04/06/05 01:35 PM
Shell Marr

Reged: 08/04/03
Posts: 14959
Loc: Seattle, WA USA

Quote:

I just checked out the site and it seems fairly secure and it says that will not share our personal info with anyone without our written consent. Here is the link again https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=D168600013. I think we should ALL take a few minutes and let them know that IBS is a REAL problem, that its NOT all in our heads and its about time the health care and pharmacutical people came up with an accpetable treatment for IBS!




Thanks... I did send a note to them just a few mintues about....along with a link to my article that was posted in Heather's Newletter a few weeks ago. I sure hope the RIGHT info gets to them!!

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Yep, you certainly have my permission to talk about this site, or me, new
      #167672 - 04/06/05 01:39 PM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA

or whatever else you'd want to mention but feel you'd have to ask me about first. No worries - I'll be happy to see any good info about IBS on the show. I'm going to try and contact them, don't know what will happen, but hopefully something.

- Heather

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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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i JUST submitted this, lets see what happens... new
      #167673 - 04/06/05 01:41 PM
AllieGator

Reged: 01/24/04
Posts: 108
Loc: Rockland County, NY

My name is Allison Schloss & I am 20 years old. I have been suffering from IBS since I was about 14 years old. I constantly missed school and doctors could not figure out why. My parents assumed I didn't like school and that was the reason I was getting so sick. After seeing about 6 or 7 doctors and going through countless tests, it was concluded that I had IBS. I was told people don't usually suffer from IBS at such a young age, but some children who dealt with a great degree of stress at an extremely young age are just prone to it. When I went off to college I became so sick and lost so much weight that I had to leave school and take a semester off. It was during that time period that I experimented with different foods and tried to figure out a somewhat steady diet that I could follow. Most of the time I was eating the completely wrong things and was getting worse and worse. Then I discovered a lady named Heather Van Vorous, and my life completely changed. I ordered her book and joined a community of other people living and coping with IBS on her website, helpforibs.com. It was amazing how nice people were in answering my many questions and to realizing I wasn't alone in this. In the fall I had transferred to a new school and I am currently a junior at the University at Albany. Although Heather's diet and books have helped me immensely, I was unable to escape the stress from my family life at home. In the past three years I have been in and out of the hospital every few months, sometimes spending a week at a time only to leave with no good news. I sometimes get so sick I can't eat or drink for days at a time and I faint. That is when it becomes time to make the trip to the hospital. I cannot tell you how frustrated I am with doctors telling me there is nothing they can do for me and that the only conclusion they can make is that I have a "really bad case of IBS." I would like to share my story to help other young people like me to realize they aren't alone.

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If you can do nothing else...smile

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Re: OMG they just called me!!! new
      #167681 - 04/06/05 02:48 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

So, a women just called me from Oprah and asked me "my story" kinda thing. She was very nice and asked me to email her a picture, apparently they want to be sure you are fit for public viewing!!! LOL!! I explained to her about this site and how frustrated we are with the doctors and that we are concerned about the RIGHT info being given and she said "oh, yes, we have several specialist coming to talk with us." Although she told me she couldn't tell me who these specialist were. She said they are taping the show a week from Monday but didn't know when it would air. I really hope they do right by us!!!

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Taking it one day at a time.....

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WOW! new
      #167684 - 04/06/05 03:02 PM
cailin

Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland

I am flying over to be in the audience that day, an IBS get together on Oprah, how exciting!

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S.

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A Lady From Oprah Show Called Me!! new
      #167696 - 04/06/05 03:39 PM
Shell Marr

Reged: 08/04/03
Posts: 14959
Loc: Seattle, WA USA

A Lady From Oprah Show Called Me!!

I had just left my office for lunch...so she left a message with the answering service, I was paged. I called her back and left her a message... I'll let ya all know what happens!


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Re: A Lady From Oprah Show Called Me!! new
      #167702 - 04/06/05 03:42 PM
cailin

Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland

so exciting!!!!

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S.

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Re: A Lady From Oprah Show Called Me!! new
      #167708 - 04/06/05 03:49 PM
Shell Marr

Reged: 08/04/03
Posts: 14959
Loc: Seattle, WA USA

I'm so nervous and excited too, I hope she calls me back soon....

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www.myspace.com/shellmarr




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