For the recent posts about gluten intolerance vs. true celiac disease
#357797 - 04/14/10 10:26 AM
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Heather
Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA
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there is a great new article here
- Heather
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thank you.
After reading this, I get the impression that this doctor believes that even though your biopsy comes back normal, but you have positive gluten antibodies, you should eat a gluten free diet.
Is that the impression others got? I'm interested!
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It sounds like they just honestly don't have enough info about this whole subject.
If you think you're gluten intolerant, there is no harm in following a gluten free diet. If it helps you, that is all that really matters.
- H
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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This article does not make things much clearer about gluten sensitivity.
In response to questions about how to treat gluten sensitivity "Should they all be totally gluten-free or partly gluten-free? And does gluten actually harm them in the long run?" The doctor answered "The bottom line is that no one really knows. Part of the problem is that it depends on what type of gluten sensitivity we are dealing with. Another concern is that there are no long-term, rigorously conducted scientific studies to tell us whether a specific diet or another treatment is helpful, harmful or makes no difference to gluten sensitive patients."
Perhaps the bit that matches you best she says "If blood tests show that such patients also have antibodies to tissue transglutaminase (TTG) or deamidated gliadin peptide (DGP), I would suggest that these individuals consider going on a truly gluten-free diet, since they are most likely on their way to celiac disease."
Do you know which blood test you had? Do you experience any neurological symptoms?
It might be best if you took a copy of the article to your doctor and ask for guidance to match your personal situation.
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so your saying there is still no answer? I don't think I suffer from neurological disorders! The antibodies I tested positive for where the IgG and the IgA, I believe that is the name. The other ones I was okay on.
Quote:
If blood tests show that such patients also have antibodies to tissue transglutaminase (TTG) or deamidated gliadin peptide (DGP),
My TTG came back okay. I'm not sure what DGP stand for. I don't know what deamidated means.
Thanks for your opinion!
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Cyndy you are asking questions that are difficult for anyone on this board to answer. You have a right to get a clear answer from a specialist.
An approach you might use is to make an appoint with you GI doc. Before the appointment send a copy of the article Heather pointed out to the doc with a short hand written note expressing you confusion and anxiety about what approach to follow and you would like professional guidance.
It is darn frustrating when professionals don't provide clear guidance with understandable choices in situations such as yours. 
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STABLE: ♂, IBS-D 50+ years - Science of IBS
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and if you're not happy with what your current GI doc has to say, see another doc! For every bad one with out-of-date info and a flippant attitude there's another one who keeps current and genuinely cares.
My aunt actually has celiac (which she self-diagnosed before any of her docs figured it out). In the end, she counted up something like 20 different docs she'd seen over the years to get to the one who finally "got it".
- H
- H
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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Quote:
This article does not make things much clearer about gluten sensitivity.
I have to agree.
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IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!
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which is actually something I liked about it. It was a medical article with a medical author and it was a refreshing change to actually hear an admission that this is a big gray area right now.
That's in strong contrast to what so many of the gluten-questionable people on the board hear from their own docs. I think it's clear that no one really knows yet how to treat people who come up positive in some ways (but just some, not all) for gluten intolerance.
It also gives strength to the idea that if someone does suspect gluten intolerance, especially if they have had any kind of positive test result, they might want to try going gluten-free.
- H
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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!
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Verdu, E. F., Armstrong, D., & Murray, J. A. (2009). Between Celiac Disease and Irritable Bowel Syndrome: The "No Man's Land" of Gluten Sensitivity . American Journal of Gastroenterology, 104(6), 1587-1594
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
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The Role of Food & Dietary Intervention in IBS
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