3 months to feel better once it's in remission!? Last time I got blood work done my EB was not getting any better - I'm sure that's why I've been so tired. The doc said I was showing anti-bodies for it though - so I guess that's good. I hope you feel better sweetie! Are me and you the only ones here who have EB? You know - a huge percentage of people actually carry the EB virus, but aren't affected by it. It's mainly passed through saliva, but if your immune system is strong you'll never be affected by it. But then once you get infected you've got it forever - it just comes and goes (in remission and all)....I konw you know all this Steph - but for those of you who never heard of EB (I hadn't until I got my test results).
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Re: Update!!!!
Last time I got blood work done my EB was not getting any better - I'm sure that's why I've been so tired. The doc said I was showing anti-bodies for it though - so I guess that's good. 
