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Re: official diagnosis obtained....
      04/29/04 05:30 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Aw, Jen, welcome to the club. Not fun at all, but what can we do. When I was diagnosed, it was actually kind of relief, as it validated my symptoms and explained a lot about my life.

The FMNet site is one of the best. I subscribe to their newsletter which is excellent, especially on new research on meds and stuff. There truthfully isn't a lot that doctors can do, so don't be too frustrated if they can't "fix it" immediately. The two main things are exactly what you've been started on, correcting the sleep problem and treating the pain.

FYI, I'm on Elavil and OTC benadryl for sleep and for the pain, I take generic Tylenol and Ultram, a non-narcotic prescription pain killer. That keeps me pretty stable, except when I overdo it or have a crisis like my poor kitty dying last weekend.

The good news is it's not progressive and it's not fatal. It just a pain in the neck...and the back...and the legs...and the arms... and the feet...and the hands....and the head...and the neck. Oh, I said that already. Oh yeah then there's the fibro fog. The other day I put the bread in the refrigerator rather than the breadbox. Two days before that I put the cat's container of food with the plastic lid on it carefully down on the floor where her dish goes, rather than in the refrigerator. So you might want to dye your hair blond, so you can say you're having a "blond moment." (No offense to all you pretty ladies on the board, it just sounds a lot sexier than a "senior moment.")

Seriously, Jen, I'm so sorry to hear you've got it, too. But hang in there. Throw a great big pity party for yourself, then gradually move on.

I wish I could give you a great big (((((((((((((((((HUG)))))))))))))) right now.

Love ya.

--------------------
Laura
Keep it simple!

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Entire thread
* official diagnosis obtained....
jenX
04/29/04 04:11 PM
* Re: Jen..just curious..
crc
05/04/04 06:21 AM
* Re: Jen..just curious..
jenX
05/04/04 06:30 AM
* What?!
tarabara04
05/04/04 11:14 AM
* CFS- fibro link
jenX
05/04/04 11:42 AM
* Re: CFS- fibro link
LauraSue
05/04/04 01:48 PM
* really?
jenX
05/04/04 02:06 PM
* Re: really?
Linz
05/05/04 03:13 AM
* Yes! Really!! -nt-
LauraSue
05/04/04 04:42 PM
* Re: official diagnosis obtained....
Kree
05/03/04 05:54 PM
* Re: official diagnosis obtained....
Lilybear
05/01/04 11:22 AM
* what is fibro....
jenX
05/02/04 06:03 AM
* JenX this is fantastic info on Fibro but scary to me..
Kandee
05/03/04 05:35 PM
* Kandee...
jenX
05/04/04 05:19 AM
* Re: Kandee...
tarabara04
05/04/04 11:31 AM
* Tarabara, There is no way YOU can have these things and
Kandee
05/05/04 08:00 AM
* Re: Tarabara, There is no way YOU can have these things and
tarabara04
05/05/04 09:05 AM
* Love your attitude!!! More should think like you!!! -nt-
Kandee
05/05/04 09:09 AM
* Thanks for being so nice! -nt-
tarabara04
05/05/04 09:11 AM
* Re: Tarabara, There is no way YOU can have these things and
LauraSue
05/05/04 09:06 AM
* i concur as well, TB., but....
jenX
05/05/04 08:51 AM
* Re: i concur as well, TB., but....
tarabara04
05/05/04 09:09 AM
* Re: i concur as well, TB., but....
LauraSue
05/05/04 08:59 AM
* Re: i concur as well, TB., but....
Linz
05/05/04 09:31 AM
* Yeah...
tarabara04
05/05/04 09:15 AM
* Re: i concur as well, TB., but....
Kandee
05/05/04 09:04 AM
* Re: i concur as well, TB., but....
LauraSue
05/05/04 09:06 AM
* Re: i concur as well, TB., but....
tarabara04
05/05/04 09:16 AM
* Re: Tarabara, I second that opinion!!
gigi
05/05/04 08:20 AM
* Re: Tarabara, I second that opinion!!
tarabara04
05/05/04 09:18 AM
* Re: Tarabara, one more thing !!
gigi
05/05/04 08:23 AM
* Re: Tarabara, one more thing !!
tarabara04
05/05/04 09:19 AM
* gigi
Kandee
05/05/04 08:43 AM
* Re: gigi
gigi
05/05/04 05:10 PM
* JenX
Kandee
05/04/04 10:31 AM
* thanks, Kandee
jenX
05/04/04 10:46 AM
* One more question please, JenX.......
Kandee
05/04/04 11:57 AM
* you may be on to something....
jenX
05/04/04 12:46 PM
* All such interesting information....
Kandee
05/05/04 07:40 AM
* Kandee
jenX
05/05/04 09:21 AM
* Re: All such interesting information....
LauraSue
05/05/04 09:01 AM
* Laura Sue
Kandee
05/05/04 09:07 AM
* Re: Laura Sue
LauraSue
05/05/04 10:52 AM
* Thanks Linz and Laura Sue....
Kandee
05/05/04 11:49 AM
* Peppermint Oil
tuxedocat
05/05/04 04:04 PM
* Re: Peppermint Oil
Kandee
05/05/04 06:19 PM
* Re: Peppermint Oil
tuxedocat
05/05/04 07:53 PM
* Massage
Linz
05/05/04 09:36 AM
* Vit drips
Linz
05/05/04 08:03 AM
* Kandee
Linz
05/05/04 03:19 AM
* Linz
Kandee
05/05/04 07:51 AM
* Re: Linz
Linz
05/05/04 08:00 AM
* Linz
Kandee
05/05/04 08:50 AM
* meds and money
Linz
05/05/04 09:35 AM
* Doctors and Fibro
Linz
05/04/04 11:22 AM
* that's what i'm saying to you!
jenX
05/04/04 11:26 AM
* I'm going to talk to my doc...
StephS
05/04/04 06:19 AM
* Re: I'm going to talk to my doc...
Kandee
05/04/04 12:03 PM
* Re: I'm going to talk to my doc...
jenX
05/04/04 06:36 AM
* Re: I'm going to talk to my doc...
StephS
05/04/04 06:44 AM
* remind me about your appt so i can send you good vibes on Monday! -nt-
jenX
05/04/04 06:59 AM
* Re: Jen and Steph..
crc
05/04/04 06:54 AM
* A huge thank you...........as in the 4th paragraph
Kandee
05/04/04 10:28 AM
* Re: YourWelcome!
crc
05/05/04 05:56 AM
* Cindy
StephS
05/04/04 07:52 AM
* Re: Cindy
crc
05/05/04 05:47 AM
* Re: what is fibro....
LauraSue
05/02/04 08:34 AM
* good grief
chinagrl
05/01/04 05:55 AM
* the upside of IBS as a fibro symptom...
jenX
05/02/04 05:50 AM
* Re: official diagnosis obtained....
JBI
04/30/04 09:00 PM
* thanks. i'm always positive. negative is so unattractive! -nt-
jenX
05/02/04 06:04 AM
* Re: official diagnosis obtained....
gigi
04/30/04 12:06 PM
* Hi Jen.....{{{{{hugs}}}}}
Nugget
04/30/04 09:01 AM
* Re: official diagnosis obtained....
Janey
04/30/04 08:57 AM
* AMEN! -nt-
jenX
04/30/04 09:22 AM
* Thanks, all...
jenX
04/30/04 06:23 AM
* Re: Thanks, all...
LauraSue
04/30/04 08:03 AM
* SILVER LINING!
jenX
04/30/04 08:13 AM
* Jen, You're the Queen!
Bevvy
04/30/04 08:27 AM
* Re: Jen, You're the Queen!
LauraSue
04/30/04 08:41 AM
* LS
Bevvy
04/30/04 11:35 AM
* Aw, Bevrs....
LauraSue
04/30/04 12:13 PM
* My ROCKING Chair?
Bevvy
04/30/04 01:04 PM
* what's it to ya....?
jenX
05/02/04 06:06 AM
* THIS!
Bevvy
05/02/04 11:02 AM
* i'm waiting!
jenX
05/02/04 12:52 PM
* Knitting
chinagrl
05/01/04 05:54 AM
* Re: Knitting
*Melissa*
05/01/04 09:34 AM
* Re: Bev and her Rocking Chair!
*Melissa*
05/01/04 04:22 AM
* Gee, Thanks, Mags!
Bevvy
05/01/04 06:08 AM
* Re: Gee, Thanks, Mags!
*Melissa*
05/01/04 09:31 AM
* Buns and Mags!
Bevvy
05/01/04 12:48 PM
* LOL! My Mistake!! Me Bad!! Fibrofog!! Brain Fart!!! Recliner, Recliner, Recliner!! -nt-
LauraSue
04/30/04 06:01 PM
* Hey Jen
peaches
04/30/04 07:02 PM
* silly goose!
jenX
04/30/04 08:41 AM
* Re: Thanks, all...
barbie
04/30/04 06:37 AM
* Re: Thanks, all...
jenX
04/30/04 06:41 AM
* Re: Thanks, all...
tuxedocat
04/30/04 08:33 AM
* No, it's BIOTENE and it's great!!! GO BUY SOME NOW!!! RUN DON'T WALK!! -nt-
LauraSue
04/30/04 07:50 AM
* oh my! ok, LS! LOL! -nt-
jenX
04/30/04 07:53 AM
* Re: Thanks, all...
barbie
04/30/04 07:11 AM
* Re: official diagnosis obtained....
Shirl
04/30/04 06:20 AM
* Re: official diagnosis obtained....
barbie
04/30/04 06:17 AM
* Re: official diagnosis obtained....
crc
04/30/04 05:08 AM
* yeah, IBS is a big ole fibro symptom. how fun! LOL -nt-
jenX
04/30/04 05:47 AM
* Re: official diagnosis obtained....
barberm10
04/29/04 08:14 PM
* OH, Jen
StephS
04/29/04 08:47 PM
* Jen...my angel!!!!!!!!
tarabara04
04/29/04 08:02 PM
* tarabara: stop making me cry every time you post, please!
jenX
04/30/04 05:45 AM
* de nada -nt-
tarabara04
04/30/04 11:48 AM
* Fibro!
Bevvy
04/29/04 06:22 PM
* Re: official diagnosis obtained....
LauraSue
04/29/04 05:30 PM
* Laura Sue, You're THE BEST!
Bevvy
04/29/04 06:26 PM
* Re: official diagnosis obtained....
Vicam
04/29/04 05:25 PM
* Re: official diagnosis obtained....
*Melissa*
04/29/04 05:20 PM
* Re: official diagnosis obtained....
michele
04/30/04 07:50 AM
* Re: official diagnosis obtained....
Shell Marr
04/29/04 04:26 PM
* Hey Jen
peaches
04/29/04 04:38 PM
* Re: Hey Jen
jenX
04/29/04 04:45 PM
* Re: Hey Jen
Kandee
04/29/04 05:00 PM
* Re: Hey Jen
jenX
04/29/04 05:04 PM
* Re: Hey Jen
Linz
04/29/04 05:14 PM
* Re: Hey Jen
jenX
04/29/04 05:19 PM
* Must be all those morning smoothies you have! - nt
Linz
04/29/04 06:02 PM
* well then, i will never give them up!!! -nt-
jenX
04/30/04 07:50 AM
* Kandee
Linz
04/29/04 05:02 PM
* if i may....
jenX
04/29/04 05:37 PM
* Jen is right about T3 plus..........
Kandee
04/29/04 08:52 PM
* B12
jenX
04/30/04 05:55 AM
* Fibro
Linz
04/29/04 05:00 PM

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