All Boards >> The Living Room

View all threads Posts     Flat     Threaded

Biofeedback et.c. - some thoughts and ideas
      11/28/08 08:31 AM
Ulrika

Reged: 08/20/06
Posts: 581
Loc: Uppsala, Sweden

Hi there!

Since it's been quite some time since you posted this I'm not sure if you'll see this or if you'll find it helpful as I don't know how far you've come with the biofeedback et.c. I'd email you if I had your address but I don't so I'll try posting here.

I underwent biofeedback training for the pelvic floor last fall to see if it would help me regain control of my sphincter. In my case it helped some but not enough, but anyway. I have nerve damage because of my childhood paralysis condition. They found that I had too high a muscle tone when I was supposed to be relaxing but that I couldn't increase the tone enough voluntarily to hold BM in. So our problems probably have some differences and some similarities.

I'm curious to see how the biofeedback is working out for you. I also want to tell you there is a procedure that can be tried for this condition if biofeedback doesn't help. This is something they suggested I'd try but in the end the surgeon and I decided together that it would probably not have helped enough for me since my problem was originally in the spinal cord rather than in the peripheral nerves. You may remember my writing about this procedure before. What they do is they put in electrodes through the skin in your back and put them close to one of the nerve roots in the sacrum. Then they connect the electrodes to a device you carry around you waist. The electrodes will then stimulate the nerve root and may help correct different disorders in the pelvic floor, such as incontinence or the type of problem you have. They don't know exactly how it works, just that it does work sometimes. There are a lot of things going on down there with different types of interactions between nerves and muscles. You'd be asked to try this for maybe 1-3 weeks and then evaluate if it has helped. If it hasn't they will simply remove the electrodes and if it did help they will connect the electrodes (they might have to change electrodes if they didn't put permanent ones in at the test phase) to a pacemaker that they put under the skin at the back of the hip. It is a minor surgery done either when you're awake or with you sleeping, but in either way you should be able to leave the hospital the next day at the latest. You'd have to be careful not to bend your back too much the first few months though since the electrodes need some time to "stick". After that you'd be able to do most things apart from extreme back bends and things like that. Anyway, just thought I'd mention it so you can bring it up with your doctor if you're interested in it. But of course I hope biofeedback will help for you.


/Ulrika

Print     Remind Me     Notify Moderator    

Entire thread
* Confused about Biofeedback Therapy and Test Results!
AmandaM
08/06/08 06:41 PM
* Biofeedback et.c. - some thoughts and ideas
Ulrika
11/28/08 08:31 AM
* Re: Confused about Biofeedback Therapy and Test Results!
sharond
08/07/08 07:15 AM
* Re: Confused about Biofeedback Therapy and Test Results!
Fen
08/07/08 04:05 AM
* Thanks and a couple more questions
AmandaM
08/07/08 09:24 AM
* Re: Thanks and a couple more questions
sharond
08/07/08 09:47 AM
* Re: Thanks and a couple more questions
Fen
08/09/08 02:49 PM

Extra information
0 registered and 145 anonymous users are browsing this forum.

Moderator:  Heather 



Permissions
      You cannot post until you login
      You cannot reply until you login
      HTML is enabled
      UBBCode is enabled

Thread views: 2277

Jump to

| Privacy statement Help for IBS Home

*
UBB.threads™ 6.2


HelpForIBS.com BBB Business Review