So I just wanted to put this out there to see if anyone had any advice. My fiancee who was diagnosed with IBS three years ago has been going through a very difficult time lately. He started having severe stomach pains about six months ago we've had test after test done on him and everything comes back normal. They keep thinking it may be his appendix but of course the tests keep coming back negative. They've had him on Percocet for the pain which of course does nothing for the pain. We've been to see his G.I. specialist, and she did an Endoscopy and Colonoscopy both of which came back negative for anything. After the colonoscopy was done since everything came back negative she suggested he needed to exercise to lose weight, which he can't do he's in so much pain constantly he can barely make it for the weekly trip to the grocery store. She also recomended he take Dicetel which he had been taking for about 3 months before we got to see her and that hasn't done much for him, as well as fiber supplementation which he has been on for the last 3 years since being diagnosed. She also recommended something called Elavil which I believe is an anti-depresant. He has also started following the Eating for IBS diet. He started that about a month ago and the IBS symptoms he had before have improved significantly but the pain just keeps getting worse.
I am at such a loss on what to do for him. The medical community has all but given up on him becuase they have given him the diagnosis pain predominant IBS. Everyone says they have no idea what is causing his pain but they are unwilling to find out. They just keep telling us they have no test to prove to us the pain is due to the IBS but we just have to believe them when they say that's what it's from. But the symptoms don't get better with bowel movements and it just doesn't seem to fit for me. Every test he has gotten has come back clear which has also made people not only in the medical community but at his work say that his pain is not as bad as he said it is (even though a few days ago he collapsed he was in so much pain) and that there's nothing wrong with him.
I am at such a loss on what to do, I hope there's someone out there who has had a similar situation that can give some advice on what can help with his pain. His pain is mostly centered around the lower right abdomen, it is a dull achy pain that gets sharp and stabbing at some times. The pain radiates through his whole abdomen but is the worst in the lower right. He has not only been doing the Eating for IBS diet, but the hypnosis for IBS as well and as I said it helped with the bowel movements they have become more regular and he's not panicking if he has to go anywhere but the pain has gotten so much worse. It is most definetly not his appendix, that has been checked several times...
So please if there's anyone out there who can help or who has found something to help with this type of pain it would be much appreciated. I must say I am appaled at how the medical community has treated him all because he has the diagnosis IBS. His work won't even approve him for ltd because they say IBS is not a disability and there's no reason why he can't work, but he's in so much pain he can barely stand somedays. I can't tell you how much we've been through and how terrible it has been. The situation feels hopeless and I'm hoping someone has found something to help.
Thank you so much if there is anyone to help, I'm sorry this has been so long winded...
Stephanie
Canada
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