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Survived my first remicade infusion
      02/21/08 12:40 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Wow, its been a really stress full week. I found out just a couple of days ago, that my insurance only pays 80% of my needed remicade infusions. Just for the DRUG alone, not the IV or nurses or other supplies, just the DRUG COPAY is going to be at $500-600 per each infusion. Thats 2 infusions this month and than one a month for life!!!!!! My copay is going to be more than my weekly paycheck!

I started calling helplines, charities and foundations like crazy, over 20 in all and no one will help. The reason is that even though remicade has been on the market for a while, not exactly sure how long but about 10 years or so, it is only fda approved for crohn's, rheumatoid arthritis, and a few other auto immune diseases, not sarcoidosis.

I am working with an insurance agent at the moment to see about switching my blue cross plan to one that pays better on the remicade but thats not looking promising either. I have no idea how I am going to pay for these treatments but I had my first one this morning. I was exhausted and slept through most of it. Luckily, they got the IV in on the first try, I am a hard stick and was very happy about this. Then they hook you up to the drug, pretty much just like a saline drip thing and it takes about 2 hours for all the medication to go in. Since it was my first one and allergic reactions are common, they made me stay for another hour.

I am at work now, rather tired still and feeling a bit head achy and nauseous but relatively ok. I am still swollen and hurting but I know it takes time to work. Lets hope after going on 4 years of being sick and in pain, they have found the right treatment!

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Taking it one day at a time.....

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Entire thread
* Survived my first remicade infusion
michele
02/21/08 12:40 PM
* Re: Survived my first remicade infusion
Angela E.
02/26/08 10:36 AM
* Re: Survived my first remicade infusion
Nugget
02/25/08 10:45 AM
* Re: Survived my first remicade infusion
Nelly
02/25/08 07:42 AM
* Re: Survived my first remicade infusion
Flipada
02/25/08 04:00 AM
* Re: Survived my first remicade infusion
Toady
02/21/08 04:55 PM
* Re: Survived my first remicade infusion
Mary_V
02/21/08 04:13 PM
* Re: Survived my first remicade infusion
Susie2
02/21/08 01:40 PM
* Re: Thanks girls!!
michele
02/22/08 02:02 PM
* Re: Thanks girls!!
Susie2
02/22/08 04:33 PM
* Re: Thanks girls!!
Mary_V
02/22/08 04:17 PM
* Re: Thanks girls!!
hawkeye
02/23/08 09:13 AM
* Re: Spoke too soon?
michele
02/25/08 09:56 AM
* Re: Spoke too soon?
Lisa Marie
03/19/08 04:28 PM
* Michele, how are you doing? (m)
Sand
03/19/08 10:48 AM
* Re: update
michele
03/20/08 11:21 AM
* Re: update
Angela E.
03/21/08 11:36 AM
* Re: Thanks angela
michele
03/25/08 08:19 AM
* Re: update
Mary_V
03/21/08 11:31 AM
* Re: Thanks Mary
michele
03/25/08 08:21 AM
* I'm so happy to hear this! -nt-
ChristineM
03/21/08 09:15 AM
* Re: update
Susie2
03/20/08 05:35 PM
* Re: update
michele
03/21/08 10:45 AM
* Re: update
Toady
03/20/08 03:32 PM
* Re: update
michele
03/21/08 10:47 AM
* Re: update
Lisa Marie
03/20/08 03:26 PM
* Re: update
michele
03/21/08 10:50 AM
* Re: update
hawkeye
03/21/08 10:28 AM
* Re: update
michele
03/21/08 10:51 AM
* Re: update
hawkeye
03/21/08 08:44 PM
* Re: update
Sand
03/20/08 12:07 PM
* Re: Spoke too soon?
Nugget
02/26/08 10:35 AM
* Re: Spoke too soon?
Susie2
02/26/08 07:05 AM
* Re: Thanks Susie
michele
02/26/08 08:46 AM
* Re: Spoke too soon?
Flipada
02/26/08 04:32 AM
* Re: Thanks lauren
michele
02/26/08 08:48 AM
* Re: Spoke too soon?
ChristineM
02/25/08 08:32 PM
* Re: Thanks Christine
michele
02/26/08 08:49 AM
* Re: Spoke too soon?
littlelani
02/25/08 10:54 AM
* Re: Thanks littlelani
michele
02/26/08 09:01 AM

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