Michele, I am always impressed with your perserverence, your knowledge and your ability to relate that knowledge to others. It seems like you have a pretty crappy disease to deal with and not a lot of good treatment options. But it seems to make sense that if the immune system is compromised it might be better to build it up than suppress it. Haven't checked out the MP site yet, but will. A couple of my docs want me to see a rheumy (high sed rate and c-reactive protein) but I've been hesitant. I'm still reeling from the July dx of diabetes. I dread my doc appointments next week and what my labs might say. You are certainly a lot braver and determined than I am. I just flopped into depression and anxiety and ate cake.
I think you should become a patient advocate. Maybe an MD and an advocate and malpractice lawyer as well. Might as well cover all bases. Glad to hear there is some symptom improvement. I hope it will continue and you will increasingly feel better.
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Re: Just an update
