I have to try and keep this short, my hands are killing me. Basically the results from my EMG I had over a month ago with the needle conduction test, showed that I do have a mild, progressive sensory neuropathy. However, the test results do not support my symptoms and physical findings of extreme pain and swelling. Many more symptoms but that is what she was checking for.....
We went around and around, she says I have to give it more time, I tell her I can not live like this any longer. She says the gabapentin can take months just to get the dose right and I have only been on it a couple of months. Its not helping at all!!
She says my problems are ai related, go back to rheumy. Rheumy has sent me to all these other doctors because she can't help me!!!! Neurologist says some sort of soft, connective tissue disease-go back to rheumy. Agrees that my current rheumy is the best in town (also the second one I have seen.)
Says she can not help at all with the pain, I have to give it more time. Not acceptable to me and she gets upset with me for not listening to her. I repeat back to her, she doesn't know whats wrong, my symptoms do not support her findings and she can only treat the symptoms and it may take months, if ever. She says yes. I again, say not acceptable. Around and around we go.
We agreed that it may be time to go to the Cleveland Clinic. Its the biggest, diagnosing type of hospital near me. So, I see the rheumy April 12, if she doesn't have anything further to add, I am asking to be referred to the Cleveland clinic.
She agrees acupuncture may help but didn't agree with anything else the pain specialist had said. I will continue to go to the pain specialist until I get in at the Cleveland Clinic. Whats it going to hurt?
Speaking of pain clinic, time to go for my physical therapy consult with the specialist. Lets hope this appt goes better!
-------------------- Taking it one day at a time.....
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Re: Back from neurologist
