Thanks for your post. I'm sorry you have been through so much but parts of your story made me laugh-the whole thing about swallowing the whole produce section-boy, can I relate!
All this would be much more tolerable if only the dr's weren't such asses about it all. Sorry for the language but thats the only word that fits!
I know I do have IBS, have had for over 18 years, I'm 36 but all this other stuff is relatively new. I used to be SO C, took at least once dose of miralax a day for years. This spring, it overnight changed to explosive, high velocity D, sometimes up to 20 times a day!
This higher up pain is new. I had similar pain back in June. Actually threw up blood, passed out and went to er in ambulance! They said good ole fashion gastritis. And yes, the dilaudid is heaven for the pain! To bad we can't get that to go! I've got vicodin and percocet right now for the pain but they don't help this gastritis or whatever it is. I've got some darvocet also but that doesn't do anything at all. Even taking all the narcotics, I still have D!
I've been on prescription reflux meds for a long while now and just switched to aciphex and added zantac as well so hopefully that will help.
I had my gallbladder removed bout 7 years ago and I've been reading that sometimes you can get a dysfunction of the sphincter that can cause this pain. I guess the proper name is sphincter of oddi dysfunction, anyone ever heard of it??
The humira is helping a lot with the joint pain and swelling, so I think we are on the right track there. The dr's insist that my 7.5 mg dose of daily steroids aren't causing my gi issues but I'm not so sure. However, every time i try to decrease the dose, the swelling and pain are unbearable.
Hopefully the gi guy I see next Wednesday will be at least a little kind and maybe even have some answers.
-------------------- Taking it one day at a time.....
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Re: Susie2
To bad we can't get that to go! I've got vicodin and percocet right now for the pain but they don't help this gastritis or whatever it is. I've got some darvocet also but that doesn't do anything at all. Even taking all the narcotics, I still have D!
