Irritable Bowel Syndrome Message Boards | Re: Michele: Probably a really stupid question, but...

Well, my ra antibody blood work is negative. It is possible to have what they call serum negative ra but those people will usually have a slightly positive ana and my ana is also negative.

I don't have any skin lesions or mouth sores which are both common in crohn's. They haven't truly ruled out crohn's yet, its just the crohn's doctors guess at this point. We will know more when my prometheus blood work comes back and I'll get the results of the upper gi tomorrow.

I just saw an infectious disease guy back in Feb-march and he ran a boat load of tests for various bugs and parasites. No Lyme's or h. pylori-they did find a past exposure to claymidyia pneumonia (different from the std!

) and I did do a month of antibiotics just to make sure that it wasn't causing any problems.

For the fertility stuff, they have done all the clotting things, the antithrombin, the genetic work-ups on Will and I, all the hormone levels, luteal phase defective, endo biopsy's, the list goes on-they found absolutely nothing other than maybe some low progesterone which I was supplementing at the time.

I've had my thyroid checked and my sugar levels. My parathyroid level is slightly elevated at 77 but they say not to worry about that right now-I'm going to ask the rheumy about it again though next week.

My stool sample did show an over growth of yeast so I'm doing a yeast cleanse right now and taking pro biotics.

My cbc is ok, my red blood cell count is a little low, so I am mildly anemic at the moment. My liver enzymes are only very slightly elevated from the medications I'm taking.

Around 6 years ago, I was found to have hepatitis C. They did a viral load, which was relatively low and genotyped it as genotype 1, the hardest one to get rid of. The liver doctor told me if I didn't treat it with interferon and ribavirin that I wold get liver cancer and die!

The drugs are nasty and make you very ill and then they said only 30-40% chance of it working anyways so I did nothing. Three blood tests over the last year have all come back as negative for hep c, so my body fought and killed it, which is fairly rare-less than 10% of people with hep c will have a spontaneous remission. I think that my body revved up my immune system so much to kill the hep c, that its all gone haywire now!

I have had my gallbladder removed because it was full of stones.

My symptoms are, in no particular order
-5 unexplained miscarriages
-Joint swelling-mostly hands and feet with stiffness and pain in hips, knees and wrists. The swelling is mostly controlled now with steroids, placquenil and humira.
-Headaches, which I never used to get
-Gone from constipation to diarrhea-continue to have the usual bloating and gas!
-Tired and weak all the time, no energy t all but have insomnia!
-just a general unwell feeling, stiff and achy all over
-my depression and anxiety have gotten worse but I'm sure that's from all the medical stuff!
-lack of concentration-brain fog
-nausea and occasional vomiting
-Uvietis on and off since last September

I've been diagnosed with bursitis in my hips, costochondritis in my chest, gastritis for which I do take Aciphex.

Two years ago, I severely sprained my ankle and it turned into RSD, Reflex Sympathetic Dystrophy, which is another odd thing-ending up having 8 spinal treatments for that!

My last set of x-rays do show bone erosion's in my fingers, toes and knees. They ran blood levels to check for my vitamin levels and they are fine. My sed rate is still elevated despite the drugs but my c-protein level is good which is supposed to be a more sensitive test to measure inflammation but I've also been on steroids for months so who knows if the level is actually ok or if its just ok because of the drugs!

They have ruled out lupus because of the negative ana and no skin rashes.

Thats what I can remember at the moment!!

I'm open to any anys you might have!

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Taking it one day at a time.....

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