It looks like I have a form of Cushing's Syndrome
07/04/06 04:25 PM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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Hey Guys, Well, I'm pretty depressed right now. Just started a new job which is really challenging (which is both good and bad) and was hoping I was turning over a new leaf...but I *finally* had my endocrinologist apppointment today and it turns out that what I've been saying to all my doctors all along is likely correct, I have a form of Pseudo-Cushings. They can't be 100% sure without a whole whack-load of testing...but they think that's what it is.
Thankfully they don't think it's regular Cushing's because I don't exhibit any of the physical signs...they said you couldn't be as small as me and have regular Cushing's. However, they were floored that my EXTREMELY high cortisol was never taken seriously before and really disappointed with my previous treatment. They even seemed impressed by my knowledge of the situation and all my previous tests and labs which is nice, because as you guys know a lot of doctors look down on people trying to be "arm-chair" doctors.
So, it turns out I may not have all the psychiatric problems they have said that I have...it could all be from the excessive cortisol. So I have to have a whole bunch of blood work down and do 3 24-hour urine collections (tons of fun) over the next month...and then I see them for a follow-up.
Sadly, they think the most likely cause is my birth control pill, so that's going to be the first thing they take away once they get the first round of testing in. That means my endometriosis is going to come back with a vengeance. Right now, I take my pills consecutively so that I don't get a period more than once or twice a year...but I'm not going to be able to take them AT ALL. After 8 years So I'm likely going to be in a lot of pain.
So here is my question for you guys...do you think I should ask the doctors if they could postpone taking me off the birth control one more month until I'm passed the probationary period at work? Because I dont' want to be missing work during my first three months. Hopefully I won't have to...I've worked through period pain before, but you never know.
That being said, having cortisol as high as mine for as long as I have had it high isn't a good thing either...it can lead to all sorts of bad problems.
Thanks for letting me yabber on and on.
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