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Re: Michele
      06/29/06 02:41 PM
lalala

Reged: 02/14/05
Posts: 2634


It's always fun to try to explain to people what hydroxychloroquine is and why I have to take an anti-malarial. I didn't think it would make me more susceptible to infections, but thought it was something I should ask. Other than the lupus symptoms, I don't get "regular" sick that often.

Some good news I wanted to share with you (or anyone else who's interested) is that I didn't experience any side effects with Plaquenil, even when I had to double the dose, and I'm up to 115 pounds now. So I'm gaining about 1 pound a month. Hooray! And, since I went up to 400 mg I haven't had any IBS symptoms - not sure if it's just a coincidence or due to amitriptyline or what, although I'm positive Heather's EFI guidelines have been a great help. I shared this with the rheumy who said he wasn't sure if it had to do with the Plaquenil, but that he's really interested to see what happens with my IBS over the course of treatment. In September, after six months at 400 mg, he's lowering it to 200 mg since I'm still underweight. My rheumy is very cautious - and even though I'll be on a low dose he still wants me to see the eye doctor every six months because I "only have two eyes."

Edited by Maria!Maria! (06/29/06 02:42 PM)

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Entire thread
* lupus/RA -- what to expect/ask rheumatologist?
jen1013
06/28/06 08:51 AM
* update
jen1013
07/05/06 10:44 AM
* Re: update
lj
07/05/06 01:37 PM
* Re: update
jen1013
07/06/06 11:41 AM
* Re: update
michele
07/05/06 12:02 PM
* Re: update
jen1013
07/06/06 11:37 AM
* Re: update
michele
07/06/06 12:43 PM
* Re: update
lalala
07/05/06 11:35 AM
* Re: update
jen1013
07/06/06 11:23 AM
* Re: update
lalala
07/07/06 07:43 PM
* Re: update
jen1013
07/08/06 01:19 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
JLL24
06/30/06 12:57 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
Angela E.
06/29/06 06:07 PM
* Angela
jen1013
06/30/06 08:35 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
lalala
06/29/06 02:15 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
jen1013
06/30/06 08:45 AM
* Re: Plaquenil
michele
06/29/06 02:33 PM
* Re: Michele
lalala
06/29/06 02:41 PM
* Re: Michele
michele
06/30/06 07:12 AM
* Maria
Sand
06/29/06 05:46 PM
* Re: Sand!
lalala
07/07/06 08:00 PM
* Maria - Re: Sand!
Sand
07/08/06 02:46 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
lj
06/28/06 11:55 AM
* toenails
jen1013
06/29/06 12:38 PM
* Re: toenails
lj
06/29/06 01:46 PM
* thanks, Laura! -nt-
jen1013
06/30/06 08:49 AM
* Re: LJ
lalala
06/29/06 02:18 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
Janey
06/28/06 10:53 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
jen1013
06/29/06 12:46 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
Janey
06/30/06 09:37 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
michele
06/28/06 09:32 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
jen1013
06/29/06 01:26 PM
* what is a lupus rash...
Dr. Spice Yamin
06/29/06 07:57 PM
* Re: what is a lupus rash...
jen1013
06/30/06 09:09 AM
* Re: what is a lupus rash...
Linz
06/30/06 02:06 AM
* Re: what is a lupus rash...
Dr. Spice Yamin
06/30/06 07:31 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
michele
06/29/06 02:25 PM
* Re: lupus/RA -- what to expect/ask rheumatologist?
jen1013
06/30/06 09:25 AM
* Re: lupus/RA -- what to expect/ask rheumatologist?
michele
06/30/06 09:37 AM

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