Well, I just got back, again, from the eye specialist. My eyes have been flaring really bad for over a week this time around but its been on going since last August. The eye specialist actually called the rheumy and told the rheumy that he MUST do something more to get the RA under control or I will lose my vision. I've been having to use steroid eye drops and they are causing my cornea's to "meltdown." Corneal meltdown was the exact words the eye specialist said. Ducky-no wonder they are SO red and hurt like hell!
The eye doc gave me yet another pack of oral steroids called a medopack. Its a very high dose that you taper off over 6 days. I was supposed to see the rheumy this coming Monday but I need to call and reschedule that appt for 2 weeks out. By then, the steroids will have worn off and if the Enbrel isn't kicking in, then he will start me on Imuran in addition to everything else I'm on. The eye doc was appaled at the amount of visual swelling in my body and got right after the rheumy! I guess it takes one doc to kick another in the arse!
So, I should have a few good days here from the steroids. Today started my 5th week of treatment with the Enbrel and I've been on placquenil since January, not to mention all the other stuff I take for the Fibro and IBS and Insomnia! The eye doc also listened to my breathing and said I'm only breathing at about 50% because of the costochondritis, which is swelling in the cartilage in my chest caused from the RA.
Will is ordering me a mini, light touch key board and an upright mouse today. I've got to be able to stay active with the outside world, honestly, I need the support to get through this. My twins would be due on June 18th, Fathers Day and thats also weighing heavily on me right now. All this is starting to really wear on Will, I've noticed he is drinking a lot more, not sleeping well and having tummy aches. Please send some love and hugs.
Taking it one day at a time.....