All Boards >> The Living Room

View all threads Posts     Flat     Threaded

Re: Dealing with a new diagnosis of fibromyalgia...
      04/15/05 09:42 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hi, so sorry to hear you're another member of our Fibro Club! Yes, it is difficult to adjust to the concept of a chronic illness with no cure. The process of dealing with that is very similar to the grief process, because you are grieving the loss of your "healthy" self. So give yourself time, feeling all the feelings, denial, anger, bargaining and sorrow, and you'll get through it to a place of acceptance, where fibro doesn't dominate your life, it's just part of it, like dentists and car repairs and other routine maintenance of life!

DON'T RESIST THE DRUGS!! They are extremely important to you now. If you had pneumonia you wouldn't resist penicillin. If you had diabetes you wouldn't resist insulin. If you broke your leg you wouldn't resist a painkiller or two. It's okay to take prescription drugs that are medically necessary. And there are a number of excellent medications that can help you manage your fibro symptoms quite effectively, and new ones coming on the market all the time.

Elavil is the gold standard of fibro treatment. I've been on it for around two years, since just after I was diagnosed. It promotes deep Level 4 delta sleep, which we don't get due to something called alpha-EEG anomaly sleep disorder. You are absolutely right that none of the other symptoms can be effectively addressed until your sleep disorder is managed and you erase the HUGE sleep deficit you are walking around with. (That's why it's so common for us to wake up feeling exhausted or like we've been hit by a Mack truck during the night! The technical medical name for it is "unrefreshed sleep.")

I also take other sleep meds, some every night, others just as needed (like Sonata). It's really a matter of trial and error of what your doctor thinks might work best for you. Everyone is different. (Okay, before you ask, my other sleep meds are generic Benadryl, the antihistimine that makes you drowsy, and Xanax.)

As fair as pain meds, studies have shown that the most effective, lowest side effect med for fibro type nerve pain (as opposed to muscle or tissue pain) is Ultram, generic name tramadol. I take it together with Extra Strength Tylenol generic version, and it helps me tremendously. I can always tell when I've missed taking a dose on time, because my back starts getting that fibro achy flu-like feeling.

There's a ton of info on the Internet when you're ready to start researching and there are several excellent books about it too.

Good luck to you and hang in there, it DOES get better.

--------------------
Laura
Keep it simple!

Print     Remind Me     Notify Moderator    

Entire thread
* Dealing with a new diagnosis of fibromyalgia...
steather
04/13/05 10:11 AM
* Thank you everyone!!!
steather
04/19/05 11:55 PM
* Yes....
Tissy
04/21/05 09:14 AM
* Re: Bipolar fibro
steather
04/21/05 12:13 PM
* Re: Bipolar fibro
Wind
04/23/05 05:33 PM
* Re: Bipolar fibro
LauraSue
04/23/05 03:54 PM
* Yeah, this is mentioned...
Linz
04/24/05 10:43 PM
* steather
BL
04/21/05 01:42 PM
* Beaglelover..
steather
04/21/05 11:34 PM
* Steather.
BL
04/22/05 07:09 AM
* Re: Bipolar fibro
Tissy
04/21/05 12:33 PM
* Re: Yes....
Snow for Sarala
04/21/05 11:55 AM
* Re: Yes....
steather
04/21/05 12:23 PM
* Heather
Linz
04/20/05 11:40 AM
* Re: Dealing with a new diagnosis of fibromyalgia...
LauraSue
04/15/05 09:42 AM
* LS....
Linz
04/17/05 05:00 AM
* Re: LS....
LauraSue
04/18/05 01:32 PM
* Oh yeah!
Linz
04/17/05 04:57 AM
* LS, You ROCK!
Bevvy
04/15/05 05:02 PM
* {{{gentle hugs}}}}
Linz
04/15/05 02:31 AM
* Ditto, Linz!
Bevvy
04/15/05 05:04 PM
* Thanks Bev!
Linz
04/17/05 04:56 AM
* Re: Dealing with a new diagnosis of fibromyalgia...
Tissy
04/14/05 12:33 PM
* Re: Dealing with a new diagnosis of fibromyalgia...
Snow for Sarala
04/14/05 06:45 AM
* Re: Dealing with a new diagnosis of fibromyalgia...
Angela E.
04/13/05 05:19 PM
* Re: Thanks for your support!
steather
04/14/05 05:51 AM
* Re: Dealing with a new diagnosis of fibromyalgia...
atomic rose
04/13/05 03:45 PM

Extra information
0 registered and 815 anonymous users are browsing this forum.

Moderator:  Heather 



Permissions
      You cannot post until you login
      You cannot reply until you login
      HTML is enabled
      UBBCode is enabled

Thread views: 4090

Jump to

| Privacy statement Help for IBS Home

*
UBB.threads™ 6.2


HelpForIBS.com BBB Business Review