you're the bestest!
03/30/04 11:51 AM
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jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
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Thanks for answering.
I, too, believe they're the same (CFS, Fibro). At least that's what it seems to be from my "research."
I've just started coming to terms with this CFS crap. First of all... my diagnosis was an offhanded "if you're still tired after all the stuff we've tried, then I guess you have chronic fatigue syndrome."
A) "all the stuff we tried" was putting me on Lexapro 'cause "you're tired because you're depressed." That's it. that was "all the stuff we tried." 
B) when i asked "well what do i do to manage it?" i was told, "lots of people get a lot more energy if they workout at lunchtime." I walk at lunch when I have the energy, I said. No, I mean "work out. at the gym" he replied.
1) "work out?" yes, because i can barely lift my arms you think working out will be the answer? maybe that will help long-term, but how do i get the energy to do that without taking a 3 week nap (no exaggeration)? no comment from Doc. when I asked that follow-up question!
2) i'm in a union job where i have to be at my desk at certain times or i can get fired. (needless to say, i can goof off once i'm there! hullo-- IBS boards!??  ) how am i going to get out of the office, to a gym, work out, take a shower and back to the office without anyone noticing. i get a 1/2 lunch break. ya think that's going to work???
That's the extent of the data I was able to extract from my Doctor. Because I knew nothing about CFS except the common misperceptions, I just kind of ignored the diagnosis. That was this fall, and it's only been the last few weeks that I've accepted it. And thus the self-education begins!
I've decided to do a lot of research on my own and then strike out for a better doctor.  I'm hoping to get some good names from my research and be confident that I know what questions to ask, what I expect and what to push for.
Sorry to bug you with all this, but just trying to get my bearings!
You're the greatest.
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