Thank you, thank you, thank you!!! for the responses and suggestions.
To answer a few of the questions . . . He has been on probiotics since about 6 mos old, and I have doubled and tripled his dose with no noticeable change. He also takes a supplement that has 6 different digestive enzymes.
I have always been pretty hard core about my kids diet. We eat a mostly organic, whole foods diet--fruit, vegetables, raw dairy (although Matteo has been off all dairy since June), whole grains, farm fresh eggs and all-natural pastured/grass-fed meat. They eat very very limited processed foods and virtually no sugar. Since reading Eating for IBS, I have loosened up on the white flour, and have been buying or making white or partially white bread.
They eat a ton of fruit, but we have only started giving them juice recently, to make sure we get Matteo's supplements down him. But it is usually only 4 oz/day dilluted with 4 oz water.
One of the stool samples was to test for malabsorpbtion issues, but I'm not sure if it was just fat malabsorbtion or also glucose and fructose. He has not had the hydrogen breath test for fructose malabsorption. I read somewhere it cannot be given to toddlers, do you know if this is true? Is that the only method for testing for fructose malabsorbtion? Definitely worth following up on that. Our pedi did have us take him off all fruit and juice for two weeks and there was no noticeable difference, but he was still on dairy and eggs at that point.
Our allergist does not believe there are any food allergies and she and our pedi are both recommending putting him back on dairy and eggs, because of concern about his lack of weight gain. But I have been hesitant because we have seen some improvement since taking him off these foods, and if they are IBS triggers as well it seems better to keep him off of them even if it is not an allergy.
One last question -- I do think we are seeing some improvement from the IBS diet and the solufiber (he has 2-3 tbsp/day). Based on that (and all of the other info), would that lead you to believe it is IBS? Or (I am guessing) will the diet and fiber still help, even if there is another cause for the diarrhea and pain?
My mommy gut is telling me there is something else going on, but no one else agrees and my pedi thinks I need to give up my "obsessive" quest to find a cause and accept that it is IBS and just try to deal with the symptoms.
Thank you again for the thoughts and suggestions!! And if anyone else has more thoughts I would love to hear them!
Kristi
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Re: 2 yr old son recently diagnosed with IBS
