Irritable Bowel Syndrome Message Boards | Re: Have you all been checked for Celiac disease? My story.....

Well as far as eating on the run, kinda like Heathers diet here....just planning ahead and being prepared. I have found that the gluten free diet has been alot easier to follow though. It doesn't always show up as celiac disease, but the doctor should be able to tell you if it is found in your genes or if you are at a high risk for it, then you would be considered as gluten intolerant, like myself. For example when I called my doctors office to get my test results the nurse just simply said, "No, you dont have celiac disease." So I thought ok just another negative test, I will just go back to my followup and see what he has for me next...(this doctor was determined, thank goodness!) Well when I went in for my followup appt, he says, "So what do we know?" And I say well I know I don't have celiac, I called up here at the office and got my CeliacPlus results and the nurse told me that I don't have it. This actually upset him, he called in all 3 of his nurses in his office at the time, and read my chart to them. We didn't know which nurse told me that exactly so thats why he called all them in. He said, " On this chart it shows that this patient does not have celiac, yes but is at a high risk for it. She is at a high risk for it because it is found in her genes, her mother or father has celiac. This makes her gluten-intolerent. It may not be to the point of celiac but keeping on eating gluten would have brought her to this point." So they all agreed that this was the correct diagnosis. He was quite funny, hearing all the nurses agree with him knowing that one of them told me wrong! I just burst out in tears and gave my new doctor the biggest hug, I was so happy and he seemed genuinely happy for me. As far as my friend, she has celiac and with some celiacs you can develop a skin rash with coming into contact with wheat so they don't even touch it. Me I can just pick them off and it wont bother me. You do have to be careful with cross-contamination though, so I still do watch this very carefully. But once you are off the gluten this will stop the progression of the disease, and he really matters how much damage it has done all ready. But for the most part after going on the diet all my symptoms subsided, within a 2 week period.

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