I had posted earlier with questions on the differences between Lotronex and Lomotil. I thought I'd share my experience. I realize there are many bad side effects to this drug and it's not to be taken lightly. It was right for me at this time.
I am taking .5 mg a day now each morning. I originally wanted to try this b/c I was having some really bad days, where it would take me a few hours to be able to leave the house because I was going so much. not D, but urgency and frequency. My family was going to Disney for a week and didn't want to be the one holding everyone up and having to be so careful with every thing I put in my mouth. I had been very careful prior and it didn't seem to be helping. I was relying a lot on imodium and lomotil and then getting C for a day and then the cycle would repeat.
At first lotronex made me a little C but as my body had adjusted more, I don't have urgency anymore. I normally go a little in the morning and then again at night. It takes me longer to go but I think that will adjust itself also. I also am eating more insoluble fiber. I was so afraid to eat salads or fruit and I have been enjoying these things again. I don't want to be on this a long time but for now, It has helped stabilize me. I will continue the eating for IBS diet because I know it's healthy. I am enjoying the freedom and confidence of going out of the house and not fearing that I won't be near a bathroom.
I had one incident at Disney where I was on line for a ride and knew I had to go before getting online. I knew for awhile but kept holding it. (silly me) I did have to exit the line and make it back to a bathroom and then rejoin my family later. It was a one time thing though and after I went it was done. (not like before, where I would have to go several times in a few minutes).
Just thought I'd update those who might be interested. Sandy
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My doctor put me on Lotronex now and here is some info for those interested (m)
