Prissy, I'm so sorry to hear that you're going through such a difficult time. If it's any consolation, You are DEFINITELY NOT ALONE. If you read through the boards, you'll find that most of us have at some point experienced exactly what you're describing.
You didn't mention what you are doing to help combat this... Are you following a certain diet? Taking any herbs or medicines? Probiotics?
I was diagnosed 20 years ago, my most recent flare up began in March of 2007 - and my entire life was a living hell until I found this site and began following Heather's advise and that of others that I've met here.
I've been following Heather's diet (very strictly) for about 5 weeks, drinking her peppermint and fennel teas (available from this site), taking a probiotic for almost 3 weeks, listening to the hypno CDs (available from this site)daily. My symptoms have improved dramatically. I actually had a normal BM every single day last week with only 1 day having 6 BM so for me that is a HUGE improvement!!
As for helping others understand what you're going through, I can definitely empathize as I've struggled with this myself. The hyno CDs come with a CD that is designed specifically for family and friends to help them understand what you're going through and I've asked several of my loved ones to listen to it. I haven't gotten a response back from anyone yet, but I'll let you know when I do.
Don't give up, there are a multitude of helpful hints on this site, I'm sure you'll find the right combination for you!! You just have to stay strong, positive and determined to help yourself - because you certainly can't rely on the medical profession to do it!!
-------------------- Jeanette IBS-D, then switched to IBS-A, now stable with Udo's Choice Super Bifido Plus Probiotic
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