Irritable Bowel Syndrome Message Boards | Re: Sorry lengthy, but I am ready to throw in the towel or die.Sand

Sand,

Thank you so much for the patience of writing all of that information, I will not take it lightly. I guess I did read wrong or is was written wrong about the calcium, because I have been using the calcium citract, only 400 per tablet once a day and tried twice a day with a SF, but maybe that has been a cause. I have been 100% diagnosed with IBS through zillions of tests, no celiac, no crohns, no colitis, etc. I have followed Heather's diet, until I get the confusing messages from others, and I do know what one can tolerate another cant. I wanted to try tums, so I will try those again, I love the fruit flavored ones, and since I have lost so much weight and my Mom has osteoporosis I am a prime candidate for it, so I need it for my bones!! I did know the Vitamin D is essential to the absorbption of the calcium, it was the magnesium that scared me whether is caused d or C....

As far as anti-depressents, I have tried Prozac in the past, which was the period of time in my life when I ate pretty much whatever and had very few attacks, but still got them. I have since tried the Prozac and it keeps me up at night which it never did before, and I don't sleep well as it is, so I stopped it. I was on Adapin (doxepin) for 4 1/2 weeks and NEVER slept, so I had to wheen off that that as well. I have a prescription for elavil, which I was told to take at bedtime, but it made my heart race, so of course I stopped that. I have heard a lot of good things on this board about Lexapro, so I have been wanting to talk to my doctor about that one. However, right now with possibly starting a new job, I don't want to be on any kind of medication that will make me poop, sleep, or be hyper.

From what I understand Lotronex is not available in the United States, or at least that is what I have been told. It was taken off the market because of severe adverse reactions.

I will get calcium tomorrow, only got dressed today at 3p.m. recovering from my attack last night. My husband went to see his family doctor today and was explaining the reaction I had with my hands freezing up and getting numb and tingling and he had a name for it and he said it sounded like when my colon goes into spasm it is trying to function properly and by doing so it is exhausting other parts of my body of it's oxygen and blood supply. Now, with that information I would think I could find a vascular doctor that could make sense of that!! I have been to the cleveland clinic, my opinion they suck. I had test and tests and more tests, sent me home with the adapin (doxepin) and after 4 1/2 weeks of not tolerating it I called there 4 times and left messages with actual nurses and NO ONE has called me back. How does that sound for such an excellent hospital? I was shocked. My husband's neurologist said he would see me, but has to wait until he gets my records from there, so maybe he could put the blood/oxygen thing together. I was told before that when I have passed out on the toilet from the pain being so bad, to have a brown bag and breathe into it, but I couldn't even make it to the bathroom last night, after the arms went so did my legs feet and butt, I couldn't walk, let alone sit on a toilet. I have had to crap laying on the floor before... sad huh?

Several have mentioned the hypnosis tapes, I can't afford them right now, but would love to get them. I'm not working, my husband has MS and just has his entire sigmoid colon removed (lucky guy) just kidding, along with a very severe bladder/colon attachment that was secreating bowel into his bladder, he is lucky to be alive!! So funds are tight. I've checked the side effect of the lorazepam and it does not say anthing aobut abdominal cramping, so I will keep that when needed. I'm just still confused that when the last GI specialist said that if the prescription medication I take for colon spasm doesn't work, if I take one when it is happening it is not colon spasm, then why in the heck do I get relief after I have diarrheaded myself to death, doctor!!!!!

I also want to check into the nautropathic remedies also. I am desperate, I was absolutely serious last night when I told him I wanted a colestomy. I think I could live with the diarrhea, but not the ungodly, inhumane, gut-wrenching-labor pain, numbness, tingling, nausea, etc. effects as well.

Thank you again!!

Cheryl

--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

Print Remind Me Notify Moderator