For what it's worth, I have also had 2 celiac tests, and both were negative for celiac and inflammation. But I had really painful arthritis developing over the last 2-3 years (I'm WAY too young for this stuff) and increasing, and I had bakery/sugar cravings daily, mood swings, the lot. So my Dr. told me she had several patients like me who benefitted from gluten-free diets. Try it.
I found the Specific Carbohydrate Diet, and started following it, and making my own bread from almond flour. It's the best bread I've ever eaten, easy to make, and gluten and yeast and sugar-free, which means that it does not trigger cravings for more gluten and sugar.
http://www.scdrecipe.com/recipes.html (gluten-free recipes)
Even though it's made from nuts, which is a "trigger food", it hasn't worsened my IBS. I immediately lost the muffintop around my middle, which I took as a good sign that an allergen has been omitted. The arthritis pain disappeared and has not returned.
But the IBS-C remained, so now I'm going to try combining the best of both these diets. I ordered Heather's book over a week ago from Amazon, and I'm still waiting. Meanwhile, the fiber and tea alone has resolved my pain and most of my bloat, at least this far.
So-here are the conclusions I've drawn from my experiences:
1) the celiac test is not always sensitive enough to detect a reaction to gluten, as my Dr. has suggested (and by the way it celiac disease and gluten intolerance ARE hereditary-they run in families-this from a rheumatologist!)
2) We IBS folk can have more than one thing going on, and congrats to us for figuring it out to the extent we have
3) I'm convinced that refined sugar and the foods that contain it are extremely poisonous, (more so in some people than in others), especially in large amounts, and are capable of causing and exacerbating inflammation of all types, and overgrowth of bacteria and yeasts (more inflammation, gas and toxicity). I'm beginning to feel like a different person having cut it out, and to deal with my IBS-C/malaise problems using a combination of remedies.
I'm waiting for Heather's books, and looking forward to establishing as simple a routine as possible so I can get my head out of my guts and think about something COMPLETELY DIFFERENT!
I hope this helps
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Re: Flattened Vill- Please Help!
