I have a seven year old with ibs. It is a severe case, with weight loss. She cannot even take a bite of food without severe pain. We have been thru the workup for the last 6 months. For 3 months, using bentyl 3 times a day was a miracle drug. Now we are having problems again. She just went thru an endoscopy and everything was negative except for inflammation in the esophogus. She will also now get back on prevacid and continue her bentyl, and use the diet guidelines, and the soluble fiber and relaxation techniques and the hot packs to try to manage her pain. (and constantly trying new things to help and trying to balance it all to stop the pain) The worst part, of our ordeal, is teachers, parents and friends who do not believe her, or chalk it up to a typical child tummy ache. I know my child I see her weight loss I know she does not lie, I feel her tense in response to the pain. Believe your child, comfort them, get them a good GI doctor who knows the pediatric diseases. I know you are suffering with them. I too am helpless as I watch my child in distress, as it interrupts her life and makes her choose missing out of fun of growing up, being concerned her stomach will hurt and not wanting to be away from mom if it does. Hang in there and keep us posted.
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