Hi, thanks for posting. It is heartbreaking seeing her suffer every night. We feel so useless and helpless, Mum and Dad are the ones that can fix anything right? Well in a kids eyes anyway until they can't!
If you have tested positive for gluten sensitivity you should be on a gluten free diet as as I understand it, this is the precursor to coeliacs.
g/f products don't contain so much roughage, that is why we use bread with flaxseeds etc in it.
She had negative coeliac bloods then went gluten free, this was the first time we had her pain free during the day as well in 6 months. The private specialist has tested her for some gene thingie (clever eh?) to see if it is gluten or the wheat. We find out the results to these new tests and other next Tuesday.
I will talk to her about strictly adhering to the diet, I know that if she could get pain free at night, it would make her want to keep on the diet, but so far everything we have tried has made no difference.
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Re: Sorry she's suffering
