Thanks Nelly, I just about cried when I read your post - for the first time in a whole year, I have come across someone who was in pain every night, and understands. I mean, I'm not ecstatic you were in pain, oh you know what I mean LOL. She finds it so hard not being about to have butter on her g/f bread/toast and I don't let anyone eat margarine - because I estimate it is about one molecule away from being plastic! She has been using a very thin scraping of peanut butter as I don't know what else to give her, she will have banana, and does have jam/jelly on the peanut butter. Or she has gluten free cereal and fruit for breakfast. Morning tea is some Rice Thins with 'something' LOL once again it is banana, peanut butter etc. I don't know what else I can give her to replace what she has always had for years ie marmite and grated cheese.
Lunch is stuffed baked potato, or brown rice, chicken and vege, or toasted sandwich with tomato paste, chicken, mushrooms and a tiny bit of parmesan, or homemade soup and toast. Afternoon tea is g/f pikletes with jam and dinner is chicken or fish with potatoes,rice, or g/f pasta and vege, or pumpkin soup, baked stuffed potato and salad.
I hope I can learn a lot, and although I live in NZ, the first night my daughter is pain free, you will hear me whooping and praising God from there LOL,
Being gluten free, soy free and dairy free as well as free of all trigger foods is very difficult, but I am sure it can be done - we just need to work together.
Thanks again for taking your time, you have made my day.
Pauline
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Re: 11 year old daughter been in pain every night for a year!
