Hi Heather and team, I am hoping you can help me. My daughter, Gabrielle, became unwell a year ago today, this started with sore tummy, then constipation, then impaction, then 3 months of laxatives etc. We have found that with the removal of gluten from her diet and by following a low lactose diet, she is pain free during the day but we have not been able to get her out of pain at night. Pain is windy/colicky in nature, sometimes passes gas, lots of noises, depending on what she has eaten determines the severity of the pain.
We have done the public health system and now are in the private health system here in New Zealand. So far she has had many tests, bloods, faeces - all clear, has had a barium swallow and follow thru done which showed no ulceration or inflamation, this was done because the specialist was worried about colitis (my father) or crohns disease, this because she has/had lost 4kg has managed to put on and keep on 500g for the last couple of months.
My sister and I both have irritable bowel, although, neither of us have never been in pain every night for a year. We know our trigger foods, but these are different to what sets my daughter off.
I guess you deal with questions like this all the time and I am sorry for wasting your time, but everything I have read and I have researched extensively on the net doesn't mention kids being in pain every night and I am not exagerating, at times she is sore but managable, other time she is wimpering or sobbing in pain.
Look, I appreciate any help you can give, I guess I am now accepting the public health services diagnosis although all they did was some routine bloods and gave us a diagnosis this lead us going to the private specialist who has been very thorough, but is costing us a fortune.
We have tried the no starch or the low starch, the no sugar, the stand on your head and move counterclockwise diet (joke).
We have tried your diet, admittedly not to the 't' as she can't have soy as well, and is grumpy about cutting everything out as she says, she really has been very good through all of this.
Interestingly my irritable bowel has never been so good as soon as I dramatically decreased and some days eat no gluten whatsoever. Last year was the most stressful year of my life and my bowel was at its best in 15 years.
Any help or advice especially concerning the night pain would be great. Also, even the meals (as close as you suggest) as possible doesn't seem to relieve the pain, I guess I am getting impatient - no it probably is total desperation to get my daughter out of pain that if it doesn't seem to work after 4 days I think it doesn't work, maybe things take longer to heal. She goes regularly now, constipation is only a problem if she eats white rice bread in any great quanity.
Thanks and I can't wait to hear any suggestions.
Pauline
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11 year old daughter been in pain every night for a year!
