Yikes! That's quite a list.
Unfortunately, my endo isn't as clear-cut as just having pain during my period. My pain is all of the time. Sometimes it gets so bad I wish I were dead. Sometimes it's almost bearable. But, there's never been a discernible correlation to my period. This is one reason why I sort of thought I didn't really have endo. I've since done a lot of reading -- official sites, cheesy doctor's brochures, various message boards -- and this does definitely happen with endo. I wish I'd thought to do some more research on it beforehand rather than just reading the symptom list on WebMD and thinking, nah, this doesn't really sound like me.
And, see, if my bowels are disrupted because of endo problems -- nearly everything is going to bother me. And the hard-to-digest stuff will REALLY aggravate it. I mean, in one sense, D is D. So how do you tell what's really causing your unhappy stomach? Did the peanut butter toast just kill you because you have IBS and you tried eating too much PB, or is it because the endo has inflamed everything so much that everything is going to hurt? I only know that some of my D is being caused by endo because of the vicious cramping and bleeding I was getting. But since my IBS symptoms have been degenerative (which IBS really shouldn't be, especially when you're eating nothing but bread and Imodium), that's why I'm wondering if it's endo-caused.
Wishful thinking, maybe. As I heal from the surgery hopefully I will know more. I'm still in a lot of pain, but digestive-wise my stomach has really behaved. I've been sort of C (from the painkillers I imagine) and my bowel movements have been pretty painful, but no cramps/D. I guess I will cross my fingers and hope it stays that way. Except for the pain part. This is also normal post-surgery so it should get better.
I think you said before you've never had a laparoscopy, and this is the only way they can find endo (though I think if there is a ton of scarring they might be able to see patches on x-rays). With a colonoscopy they can't see endo on the bowels. I know that your IBS is really bad -- don't you ever wonder if you've got endo on your bowels or elsewhere that is aggravating your IBS?
That is so incredible you've gone so long without an endo attack. I hope it stays that way!!
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jen
"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC
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Re: I have both!
