I was had the gluten antibody test done, and like you, my gliadin numbers were sky high! But the Transglutaminase AB (IgA) was okay. I had an endoscopy done which came back normal....so I continued to eat gluten.
I still felt horrible so I went to another GI after I moved and he reran the gluten test. Again, the antibodies came back positive and the Transglutamine came back normal. He did an endoscopy which was again normal. I then had the blood test redone by the first GI doc and got the same positive results. So, I doubt I would have gotten 3 false positives!
I went on a totally gluten free diet for almost a year. The only change in my symptoms were going from chronic D to chronic C. So, in a way, the diet calmed the D down, but C stinks too! I still had the pain, cramps, gas, bloat...
So then my 2nd GI doc did another antibody test after I had been gluten free for 10 months. We wanted to see if they still came back positive even though I was eating Gluten Free. If they were again positive, we would have concluded that my body just produces antibodies to gluten.
Unfortunately, the results came back normal! After following a GF diet for 10 months, I had normal antibody levels....but still symptoms.
My doctor told me to start eating gluten anyhow...to see how I reacted. This didn't make sense to me since my antibodies went back to normal after eating GF. Obviously my body didn't like the gluten....but why was I still in so much pain and constipated.
But, I am following orders and have introduced some gluten to my diet...oatmeal, oaty cereal, corn cereal with barley, spelt bread, wheat free (but not gluten free) Fig Newmans cookies, and occasionally some cereal that contains wheat. I am scared to go all out and eat the wheat...hoping that my antibodies were just caused by wheat and not all gluten.
Results thus far...I feel the same. Still crummy. So, GF didn't help, wheat free didn't help...nothing helped.
I now am going to a GI specialist at a University and he is concerned about the antibodies, but he said for now, he wants to address some other options/symptoms first.
I have no idea what to think of any of this. I'm scared to eat gluten because of my antibody tests, but also it is hard to eat GF and it didn't seem to help. So, what do I do? GF is expensive too! 7 dollars for 13 pieces of bread!
Please keep me updated on what you do....and how you feel. I would love to hear from people in the confusing situation!
-------------------- ~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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