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My antibody saga
      10/12/05 07:57 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I was had the gluten antibody test done, and like you, my gliadin numbers were sky high! But the Transglutaminase AB (IgA) was okay. I had an endoscopy done which came back normal....so I continued to eat gluten.

I still felt horrible so I went to another GI after I moved and he reran the gluten test. Again, the antibodies came back positive and the Transglutamine came back normal. He did an endoscopy which was again normal. I then had the blood test redone by the first GI doc and got the same positive results. So, I doubt I would have gotten 3 false positives!

I went on a totally gluten free diet for almost a year. The only change in my symptoms were going from chronic D to chronic C. So, in a way, the diet calmed the D down, but C stinks too! I still had the pain, cramps, gas, bloat...

So then my 2nd GI doc did another antibody test after I had been gluten free for 10 months. We wanted to see if they still came back positive even though I was eating Gluten Free. If they were again positive, we would have concluded that my body just produces antibodies to gluten.

Unfortunately, the results came back normal! After following a GF diet for 10 months, I had normal antibody levels....but still symptoms.

My doctor told me to start eating gluten anyhow...to see how I reacted. This didn't make sense to me since my antibodies went back to normal after eating GF. Obviously my body didn't like the gluten....but why was I still in so much pain and constipated.

But, I am following orders and have introduced some gluten to my diet...oatmeal, oaty cereal, corn cereal with barley, spelt bread, wheat free (but not gluten free) Fig Newmans cookies, and occasionally some cereal that contains wheat. I am scared to go all out and eat the wheat...hoping that my antibodies were just caused by wheat and not all gluten.

Results thus far...I feel the same. Still crummy. So, GF didn't help, wheat free didn't help...nothing helped.

I now am going to a GI specialist at a University and he is concerned about the antibodies, but he said for now, he wants to address some other options/symptoms first.

I have no idea what to think of any of this. I'm scared to eat gluten because of my antibody tests, but also it is hard to eat GF and it didn't seem to help. So, what do I do? GF is expensive too! 7 dollars for 13 pieces of bread!

Please keep me updated on what you do....and how you feel. I would love to hear from people in the confusing situation!


--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Entire thread
* false positive gluten antibodies blood test
hawkeye
06/19/03 08:11 PM
* Re: false positive gluten antibodies blood test UPDATE
hawkeye
10/11/05 06:28 PM
* Re: false positive gluten antibodies blood test UPDATE
hawkeye
10/13/05 05:10 PM
* So I gather you are going to eat wheat and gluten again?-nt
Augie
10/14/05 11:31 AM
* My antibody saga
Augie
10/12/05 07:57 AM
* Please help
Augie
10/14/05 11:29 AM
* any more thoughts guys and gals?-nt
Augie
10/17/05 10:59 AM
* personally
Little Minnie
10/14/05 06:30 PM
* Of course I wouldn't hold you responsible!
Augie
10/15/05 08:52 AM
* Re: personally
hawkeye
10/15/05 06:00 AM
* This is where I'm at now too
Augie
10/15/05 08:24 AM
* Re: personally
Aly
10/15/05 06:17 AM
* Re: personally
Augie
10/15/05 08:26 AM
* Re: personally
Aly
10/15/05 03:04 PM
* I wish my docs hadn't scared me off of this..
Augie
10/17/05 10:57 AM
* Re: I wish my docs hadn't scared me off of this..
Aly
10/18/05 01:38 PM
* Aly - Glad you're feeling fine about leaving the house. Enjoy your bagel! -nt-
Sand
10/15/05 07:43 AM
* Re: Please help
melissamonica
10/14/05 11:35 AM
* I can't tell for sure
Augie
10/17/05 11:02 AM
* I also had a false positive once
Little Minnie
10/11/05 08:12 PM
* why didn't you get the biopsy?
Augie
10/12/05 08:04 AM
* Re: why didn't you get the biopsy?
Little Minnie
10/12/05 04:22 PM
* Re: false positive gluten antibodies blood test UPDATE
Aly
10/11/05 06:39 PM
* Let us know how your retest goes after eating gluten again!-nt
Augie
10/12/05 08:05 AM
* Re: false positive gluten antibodies blood test UPDATE
hawkeye
10/11/05 07:46 PM
* Re: false positive gluten antibodies blood test UPDATE
Augie
10/12/05 08:13 AM
* Hawkeye!!!
Augie
10/14/05 11:23 AM
* Re: Hawkeye!!!
hawkeye
10/14/05 03:28 PM
* You got a deal!
Augie
10/15/05 08:28 AM
* Re: You got a deal!
hawkeye
10/15/05 04:15 PM
* Hawkeye
Augie
12/21/05 07:09 PM
* Re: Hawkeye
hawkeye
12/21/05 07:20 PM
* Re: false positive gluten antibodies blood test UPDATE
Aly
10/14/05 06:06 AM
* None of the docs think my Gallbladder should come out.
Augie
10/14/05 11:21 AM

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