In one thoughtful post, you mentioned support from others. My partner is very supportive, but I nonetheless feel that I need to keep quiet at times, just to preserve his sanity. Afterall, the average citizen doesn't like talking about stool quality and this type of stuff. So I try to keep it to myself unless I really need some emotional/physical stroking. I am sure we can relate, if a member of our family has an ailment (not IBS) and we do care about them greatly, but it can become tedious when they talk about all the time. So in that sense, I sort of suffer on my own. No one is in this body but me (as far as I can tell).
By the way, I have been having horrendous gas and gurgling in the left abdomen (large intestine) and I went out in the sunshine and sat on a parkbench and just took deep breaths and said over and over "My mind and body are peace". It worked! I just pictured my entire body in such relaxation and peace (a biofeedback expert one time told me it is easier to relax the entire body rather than try to relax just one part). The gas has subsided, so perhaps some of this was related to my conscious mind agitating the digestive area. Deep breaths, a sense of safety and talking to yourself in affirmative ways. If God is part of your belief system, talk to this figure also. I'm waiting for some divine advice on all this.