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Hey Augie! (long)
      04/15/05 12:34 AM
MissyB

Reged: 07/22/04
Posts: 67


Oh my GOSH do I know how you feel!!!!!!!! After 2 1/2 years of fiber, fiber and more fiber, still remaining knotted, sick, bloated and C for 12-14 days at a time. Then finding this site, trying the acacia and the whole she-bang IBS diet, then FAILING miserably I wanted to give up too! But guess what, I have been C free, cramp free and bloat free for going on 5 months! With no fiber supps Here is what unfolded over the last 6 months..first it was finally discovered that I have an auto immune disease. Though I was not diagnosed with Crohn's per the GI, I took the advice of the Rheum who said, "Let's pretend like you do and see what happens" meaning, he suggested I try a Crohn's type of plan and see what happens. So I went OFF all fiber supplements and on Miralax only. I had previously been on Zelnorm, Lactulose, SFS and Miralax. At the same time with ZERO results! Soon as I dropped everything but the Miralax, I started going regularly, albeit string like. But, the ripping, tearing and bleeding all stopped. Miralax is extremely gentle, so after some time to heal my bm's have become more normal and almost daily. I haven't missed more than 1 day a week. If you have an autoimmune disease, the fiber can cause tiny abrasions inside your intestines, then they can get irritated, ulcerate and swell, blocking you off. . I'm not sure if you realize what Miralax is, it is not a chemical and is non-addicting to your intestines. It is the same inert material they use in petri dishes, isn't it seaweed or algae or something? Anyway, it doesn't cause cramping like Exlax or the other chemical laxatives. Those things make me sick for a whole day and night! Part deaux is going on a Gluten-Free diet, I tested negative for Celiac, but my GP suggested I try going gluten free saying that sometimes people with AD's just do better being Gluten (wheat) free.
I was sick with IBS (the worst the GI Dr ever saw) for 2 1/2 years.. I just saw him the other day and he was seriously proud of me gave me a big hug for sticking it out The Rheum told me that often times the body is ahead of the bloods, so you get the symptoms well before the signs.. If you have any other symptoms aside from your fiber intolerance, like joint pain, mouth ulcers and fatigue..get thee to a rheumotologist

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Entire thread
* Managing IBS-C without an SFS
Augie
04/12/05 08:35 AM
* Re: Hi Beth... Help for you
WendySmiling
04/28/05 05:37 PM
* Augie, have you tried doing pilates?
Casper
04/15/05 04:54 PM
* Hey Augie! (long)
MissyB
04/15/05 12:34 AM
* Re: Hey Missy
Augie
04/15/05 08:27 AM
* Re: Hey Missy
MissyB
04/15/05 09:45 AM
* Re: Managing IBS-C without an SFS
fishnets
04/14/05 09:42 PM
* How did the flax seeds make you feel worse?-nt
Augie
04/15/05 08:28 AM
* Re: How did the flax seeds make you feel worse?-nt
fishnets
04/18/05 05:55 AM
* Augie can you handle flax seed? It makes me "go"! ~nt~
puffybelly
04/14/05 05:42 AM
* Re: Managing IBS-C without an SFS
bamagirl
04/13/05 08:45 AM
* Are you talking about Miralax?
Augie
04/13/05 08:49 AM
* Zelnorm
bellshel32
04/13/05 02:42 PM
* Hang in there!
bamagirl
04/13/05 10:29 AM
* Re: Zelnorm contains lactose
Wind
04/13/05 12:39 PM
* Re: Zelnorm contains lactose
melissam
04/14/05 04:28 AM
* Wow how stupid! (of Zelnorm)- nt
Little Minnie
04/13/05 01:43 PM
* I can't do it anymore. I'm worn out and hopeless-nt
Augie
04/13/05 10:59 AM
* I'm so sorry if I was a discouraging voice!
bamagirl
04/13/05 12:07 PM
* Oh beth...
nikjones_uk
04/13/05 11:01 AM
* Nik
Augie
04/13/05 11:07 AM
* Beth, I don't know you well enough ...
Sand
04/13/05 11:57 AM
* Beth, sweetie!
Linz
04/15/05 12:31 AM
* Re: Beth, sweetie!
Augie
04/15/05 08:31 AM
* Re: Nik
nikjones_uk
04/13/05 11:14 AM
* Thanks, but what are you doing..
Augie
04/13/05 12:37 PM
* Re: Thanks, but what are you doing..
nikjones_uk
04/13/05 11:20 PM
* Re: Are you talking about Miralax?
melissam
04/13/05 08:56 AM
* SFS
Augie
04/13/05 11:03 AM
* Re:Delayed Gastric Emptying
michele
04/13/05 12:40 PM
* Re:Delayed Gastric Emptying
Augie
04/13/05 12:52 PM
* Re:Delayed Gastric Emptying
michele
04/13/05 02:06 PM
* Re:Delayed Gastric Emptying
court10
04/13/05 02:33 PM
* Re:Delayed Gastric Emptying - erythromycin
HeidnOut
04/30/05 09:36 AM
* Re: Managing IBS-C without an SFS
bellshel32
04/13/05 08:36 AM
* Do you take an SFS with the Miralax?-nt
Augie
04/13/05 08:40 AM
* Re: Do you take an SFS with the Miralax?-nt
bellshel32
04/13/05 02:38 PM
* Re: Do you take an SFS with the Miralax?-
michele
04/14/05 08:34 AM
* Re: Do you take an SFS with the Miralax?-
bellshel32
04/14/05 12:13 PM
* Please help me-nt
Augie
04/13/05 08:26 AM
* Re: Managing IBS-C without an SFS
Yoda (formerly Hans)
04/12/05 08:41 AM
* Re: Managing IBS-C without an SFS
Augie
04/12/05 09:15 AM
* SFS
e_mcmaster
04/13/05 11:12 AM
* Re: SFS
Wind
04/13/05 12:51 PM
* Do you have any recipes
Augie
04/13/05 12:55 PM
* Re: Do you have any recipes
Wind
04/13/05 01:13 PM
* Flaxseed oil...
Augie
04/13/05 12:34 PM
* Re: Flaxseed oil...
e_mcmaster
04/13/05 12:47 PM
* Re: Flaxseed oil...
pedro
10/29/05 11:56 AM
* Re: Flaxseed oil...
fishnets
10/29/05 01:28 PM
* Oh, Elizabeth
Augie
04/13/05 01:06 PM
* Re: Oh, Elizabeth
e_mcmaster
04/13/05 01:10 PM
* Re: Oh, Elizabeth
michele
04/13/05 02:10 PM
* MICHELE- WARNING on ZELNORM
Augie
04/14/05 11:20 AM
* Re: thanks augie!
michele
04/14/05 12:54 PM
* No, can't do oatmeal being GF-nt
Augie
04/14/05 10:55 AM
* Re: No, can't do oatmeal being GF-nt
MissyB
04/15/05 09:49 AM
* Re: Managing IBS-C without an SFS
michele
04/12/05 09:16 AM
* I did
Augie
04/13/05 08:43 AM
* Re: I did
michele
04/13/05 11:32 AM
* Re: I did
CandaceM1210
04/28/05 04:41 PM
* Re: Candace
michele
04/29/05 08:19 AM
* Re: Candace
CandaceM1210
04/29/05 01:43 PM
* Re: I did
Kemi
04/28/05 05:04 PM
* Re: I did
CandaceM1210
04/29/05 01:57 PM
* I agree with you, Michele!! n/t
bellshel32
04/13/05 02:47 PM

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