Irritable Bowel Syndrome Message Boards | Re: To all GF eaters (Mary, Ruchie, Chrissy, Nik, etc)

Beth, I think the concensus here is that if you've tested positive for gluten antibodies, you have celiac disease. You don't need flattened villi to prove this, as often the flattened villi are a sign of disease progression. So my advice is if you have celiac disease you MUST be GF for life.

Now onto the difficult one. Going GF for 1 1/2 years hasn't brought you any relief. Are you ABSOLUTELY STRICTLY 100% GF and DF? If so, there are other food intolerances and allergens that could be causing your symtoms. Have you thought about fructose malabsorption? Its produces all those symptoms you listed. And there's yeast intolerance. And how about a soy or nut allergy? They can all cause GI symptoms, and only the smallest amounts can keep you with gripping painful symptoms, despite being vigilent with your GF.

Perhaps you should try going fructose free for 2 weeks and see whether this provides any respite. I can send you some info if you like.

I can sympathise soooooooooo much with you Beth. I desperately want to know whats causing my symptoms too, and nothing I do seems to provide me with any respite at the moment. But can I please ask that you don't start eating gluten again, your test results show that you have celiac. Keep up with the GF and see if you can find the other food intolerances that are keeping your symptoms so severe.

I remember back to the days when I was 90 % better in health. It was only because I was GF, DF, yeast free, sugar free, preservative free, IBS safe and I had all my supplements worked out perfectly. It was a miserably boring life, but what I wouldn't give to be back there again. It's make me cry to realise I truly didn't know what I had till it was gone. And now I can't seem to get it back, despite being on the same diet.

So keep up the GF, and try cutting out fructose, thats my thoughts. I'm going GF, DF, soy & nut free (possible allergens for me I've found out) and yeast free at the moment. One day at a time. If all this combination doesn't make me better I'm going to try going fructose free as well. Its a bugger of a life, but I need to do it to find my answers.

Take care sweety. Chin up and keep up your journey. The day you give up is the day you'll never ever get better.

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~ Live life, don't let life live you ~

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