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First, I'm so sorry you're having such a hard time. My brush with serious thyroid problems was blessedly brief, but even from that I know how scary - and exhausting - it can be.

Ahhh, then you know first hand how debilitating it can be! I didn't think I'd ever pull out of it..it took months.

Second, and I know this is a radical thought, but one thing my doctors discussed with me if I kept flipping back and forth from hypo to hyper was to just ablate my thyroid, making me permanently hypo. I really didn't want to do it and I'm glad since I seem to be mostly settled at normal and low normal, but if I you're still flipping back and forth it might be worth thinking about as a last resort.

Well, as of now, I've only gone hyper once..but that once is enough!!! But, for the most part I will always be hypo my entire life, and have a big fat ugly goiter.
Ablation is an option I know. (I went thru that with my husband who had cardiac ablation for his ventricular tachycardia despite having an AICD.) If I ever flip back again it is definitely an option..thanks for bringing it up. One thing I learned is once I stabilized I would get attacks AFTER I'd been to see 2 of my 3 docs...each and every time they would palpate the gland. Guess what? That triggered an attack. Rare, but it does happen. So for now no one better dare play around with my neck..LOL

I am impressed that you took it upon yourself to get smart about this. Thyroid disease is nothing to ignore.

You are lucky that you don't have to be on meds, and wise to have the levels checked frequently. I applaud you.

Third, I think adding in T-3 might be worth a try. When the doctors were talking about ablating my thyroid I did some research on replacement therapy and found that while most people did well on just T-4 the more natural mix did seem to help some people who just didn't feel well on T-4 alone.

When on the natural one that has both T-4 and T-3 I felt best...and I may try to go back on that...or have a synthetic T-3 brought into the mix. The problem with the natural hormone is that it may include a bit to much T-3 for some people. In the meantime my concern is not to get any infections that may induce another episode like I went through before. The biggest risk factor for getting subacute thyroidis is to have had it in the past.


Good luck. I hope your docs get you stablized. Thank you..and thanks for your concern. Kandee

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