Re: Laura Sue, Linz, JenX, and now me - EDITED !!
09/19/04 12:39 PM
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LauraSue
Reged: 01/14/04
Posts: 4812
Loc: New York City
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Well, welcome to the club, girlfriend. Sorry to hear you actually do have it, but glad you got it diagnosed. I laughed out loud when you described him showing you the chart where he'd already written fibromyalgia! Sounds like you have a good doc.
Starting with a low dose of **ELAVIL** is the "gold standard" for fibro treatment right now. I've been on it for over a year and it has definitely helped. It is sedating so unless your doctor says otherwise, it would normally be taken an hour or two before bed time.
You'll need to start practicing good "sleep hygiene" too, meaning standard bed time, no reading in bed, making sure the room is cool enough, all that stuff. Do a google search on sleep disorders and you'll find a list.
I take naproxyn (OTC name Aleve), but if you're IBS-D (sorry I can't remember, ribbit!), be warned it's a stomach irritant like all NSAID's. I take it with an Imodium and it works fine. If you have trouble tolerating it, ask your doctor about Ultracet, which is tylenol and tramadol. Tramadol has been proven in studies to be more effective on fibro pain that other pain killers.
I also recommend the FibroHugs website that Linz mentioned. There's also lots of really good books (and some not so good). But don't overwhelm yourself, just go at your own pace. And we're here for ya, sweetie!
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Laura
Keep it simple!
Edited by LauraSue (09/20/04 01:16 PM)
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