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Reged: 01/12/08
Posts: 534
Loc: Florida
Re: Sarcoidosis
08/10/08 05:12 PM

One of the girls who posts on here has it..."Michele". I've read several of her posts and I believe it affects your lungs and other organs.... Here's a portion of one of her posts:

I first presented with multiply miscarriages, most unlikely due to the sarc and probably due to blood clots even though my clotting tests are normal. I was recently treated for two pulmonary embolisms and 3 deep vein thrombosis, all types of blood clots and usually the pe's are lethal. While going through the fertility work-up and treatments, I started to have swelling and pain in my hands and feet, they said it was hormones. Than the constant fatigue, they said stress. Than I got pregnant for a 4th time with twins and while pregnant I got a raging case of uveitis (eye inflammation.) they called that a fluke. Lost the twins and blew up everywhere like a blow fish, than I was just depressed. Many, many, many doctors later and many wrong dx later, I finally know what I have, chronic progressive sarcoidosis.

For me, its painful almost everyday, my breathing is very limited, I have constant extreme fatigue, memory problems, the list is very long. At this very minute, I sit at my desk hooked up to a heart monitor. They are trying to figure out how much damage it has already done to my heart. I get remicade treatments for it every 4 weeks and things are improving a bit.

Not a very nice disease at all!! I perceive her as a very strong person, though...

"I Will Survive! :-)... I shall live and not die and declare the works of The Lord..."

Edited by GaGa (08/10/08 05:13 PM)

Post Extras Print Post Remind Me! Notify Moderator

Entire thread
Subject Posted by Posted on
* Bernie Mac had sarcoidosis Nelly 08/09/08 07:08 AM
. * Re: Bernie Mac had sarcoidosis Mary_V 08/11/08 04:47 AM
. * Re: Bernie Mac had sarcoidosis michele 08/11/08 08:25 AM
. * Re: Bernie Mac had sarcoidosis ChristineM 08/17/08 10:16 AM
. * Re: Bernie Mac had sarcoidosis Lisa Marie 08/11/08 04:24 PM
. * Re: Thanks Lisamarie michele 08/12/08 09:56 AM
. * Re: Michele GaGa 08/11/08 04:08 PM
. * Re: Thanks Dorothy michele 08/12/08 09:58 AM
. * Re: Bernie Mac had sarcoidosis fancymom 08/11/08 02:06 PM
. * Re: Fancymom michele 08/11/08 02:17 PM
. * sarcoidosis awareness! Nelly 08/11/08 11:12 AM
. * so sad Jordy 08/10/08 04:01 PM
. * Re: Sarcoidosis GaGa 08/10/08 05:12 PM
. * Re: Sarcoidosis Jordy 08/13/08 12:40 PM

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