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I first presented with multiply miscarriages, most unlikely due to the sarc and probably due to blood clots even though my clotting tests are normal. I was recently treated for two pulmonary embolisms and 3 deep vein thrombosis, all types of blood clots and usually the pe's are lethal. While going through the fertility work-up and treatments, I started to have swelling and pain in my hands and feet, they said it was hormones. Than the constant fatigue, they said stress. Than I got pregnant for a 4th time with twins and while pregnant I got a raging case of uveitis (eye inflammation.) they called that a fluke. Lost the twins and blew up everywhere like a blow fish, than I was just depressed. Many, many, many doctors later and many wrong dx later, I finally know what I have, chronic progressive sarcoidosis.

For me, its painful almost everyday, my breathing is very limited, I have constant extreme fatigue, memory problems, the list is very long. At this very minute, I sit at my desk hooked up to a heart monitor. They are trying to figure out how much damage it has already done to my heart. I get remicade treatments for it every 4 weeks and things are improving a bit.

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