B Brussie,
I am sorry to hear you are going through so much. I don't know if my info will help you, but I will share what I know. Both my nephew and neice have had Nissen Fundoplications for extreme GERD and both have severe motility disorders. My Nephew however as a result of his Fundoplication has what they call "Dumping", where all of his food dumps into his intestinal track at once. His system can't handle this and he gets the sweats and weakness. As a result, my sister would have to put uncooked cornstarch mixed with water into his feeding tube that was in his belly after he ate. He ate some food by mouth, but because of the pain of his reflux/GERD, it wasn't enough, so he was supplemented at night through his tube. Anyways, the cornstarch would slow down the "dumping", and then he wouldn't get this huge rush through his body and basically wanna pass out like before. Although his motility disorders will be with him for life, he is now doing much better and his health is well managed. He does not have his feeding tube anymore, nor do they use the cornstarch, but instead they have fully cut out sugar in his diet, and wow, what a difference that made for his tummy. He is a vibrant 10yr old now, and doesn't mind a bit not having sugar, because he knows how much better he feels. We also make sure he gets something special if he is at a party of there is dessert - there is something always avail for him.
I hope this is helpful in some way, I could really tell you were having a hard time - I can relate. I hope you will find some relief soon.
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Re: Nissen Fundoplication and IBS?
