Hi Debbie! I am unfamiliar with the Canadian health system but is there a way you can get into hot water physical therapy? They have hot water pools ate a lot of the physical therapy places here and it is the best, its really the only sort of exercise I can do. I would absolutely LOVE a big, jet bathtub!!! DROOOLLLL!! I have a crappy little one that I barely fit into so its not relaxing at all. I can relate to the not being able to get in and out of the tub, I definitely have days like that.
As far as my spirits go, well that depends on the day and the level of pain. I do get into funks that are hard to get out of. I have had suicidal thoughts on more than one occasion but somehow, I concentrate on getting through that particular day or night. I try to distract myself by playing with my puppies or reading a fluffy chick book. I have many relaxing and hypno type cds that I listen too at night as night time seems to be particularly difficult for me. When depressing thoughts come into my mind, I try to decide if they are something new I need to deal with or just rehashing the past-like my miscarriages and instantly try to change the channel in my head, if you know what I mean?! 
I also spend a lot of time researching my illnesses and possible causes. This can be a double edge sword as you do not want to become obsessed or start thinking you have all sorts of off the wall things wrong with you but I do believe that knowledge is power. I have a terrible memory problem since becoming sick so as I think of questions or possible tests that I think I need, I write them down in a notebook so when I go to my doctors appts, I can be sure I am asking everything I need to.
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Taking it one day at a time.....
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Re: Feeling awful
