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Re: Michele, I can relate
      01/08/07 08:05 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I have not had any of the nerve tests done yet. I think she is basing it on my history of the reflex sympathetic dystrophy and my symptoms. I have the hot burning sensations that you mentioned. I shake uncontrollably, I am very heat sensitive, like I cant sweat and turn beat red and feel like I am suffocating-and I am not talking extreme heat, like if my boss turns the heat up to 70 in the office, I think I will die!! I can't stand to wear socks, they hurt my legs, even shaving hurts. My skin is way more sensitive than it ever was. I have all this visible swelling yet my lab works shows no active inflammation. Apparently the only thing that would cause that is neuropathy. I am sensitive to light and sound and touch and my outside fingers sometimes go numb. I can't stand any sort of pressure anywhere. I have to roll over every 20 minutes and can only sit in the same position for like ten minutes. The pressure of clothes is intolerable and shoes, even headbands! I am very dizzy all the time and my vision is odd, its like everything pulsates. I am always short of breath. I have trouble going pee and sometimes leak a bit when I cough or sneeze or something. The list goes on and on.

Please update me on what your neurologist says Wednesday. I just started the lycria and I don't seem to have the munchies from it but I am also decreasing my steroids. The rheumy talked about switching my zoloft to the cymbalta at my next appt as well. I may have to have some spinal blocks for the pain and swelling in my hands.

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Taking it one day at a time.....

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Entire thread
* Update, saw the rheumy
michele
01/05/07 09:21 AM
* Re: Update, saw the rheumy
Pami
01/10/07 02:36 PM
* Re: Update, saw the rheumy
michele
01/11/07 07:48 AM
* Neurologist appt
BL
01/10/07 11:46 AM
* Re: Neurologist appt
lalala
01/10/07 12:04 PM
* Thank you, Maria, Maria!
BL
01/11/07 02:40 PM
* Re: Neurologist appt
michele
01/10/07 11:54 AM
* One quick note, Michele
BL
01/11/07 02:39 PM
* Re: Update, saw the rheumy
Jennifer Rose
01/09/07 04:03 PM
* Michele, I can relate
BL
01/08/07 07:53 AM
* Re: Michele, I can relate
michele
01/08/07 08:05 AM
* *HUG* hope this can help..
khyricat
01/08/07 06:58 AM
* Re: Thanks everyone
michele
01/08/07 07:42 AM
* Hey you
Nelly
01/10/07 07:05 PM
* Re: Hey you
michele
01/11/07 07:49 AM
* Re: Thanks everyone
suzyq
01/08/07 04:36 PM
* Re: Thanks everyone
michele
01/09/07 07:14 AM
* Re: Michele!
lalala
01/09/07 02:08 PM
* Re: Thanks Maria!
michele
01/09/07 02:19 PM
* Re: Thanks Maria!
lalala
01/09/07 02:31 PM
* Re: Thanks Maria!
michele
01/09/07 02:54 PM
* Re: Thanks everyone
Toady
01/09/07 01:30 PM
* Re: Thanks everyone
michele
01/09/07 02:53 PM
* Re: Update, saw the rheumy
Flipada
01/07/07 06:07 PM
* Here's some sympathy for you.
Casper
01/09/07 03:43 PM
* Re: Thanks girls-update
michele
01/10/07 10:06 AM
* Michele
Janey
01/07/07 01:32 PM
* Re: Update, saw the rheumy
littlelani
01/06/07 04:39 PM
* Re: Update, saw the rheumy
Mary_V
01/06/07 03:38 AM
* Re: Update, saw the rheumy
ChristineM
01/05/07 09:02 PM
* Re: Update, saw the rheumy
hohoyumyum
01/05/07 01:02 PM
* Re: Update, saw the rheumy
Shell Marr
01/05/07 12:25 PM
* Re: Update, saw the rheumy
michele
01/05/07 02:38 PM
* Re: Update, saw the rheumy
lalala
01/05/07 10:13 AM
* Re: Update, saw the rheumy
Toady
01/05/07 09:32 AM
* Re: Update, saw the rheumy
michele
01/05/07 11:05 AM

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