Irritable Bowel Syndrome Message Boards | At my wits end, not RA??

The health saga continues....I have been having awful headaches for over a month. Thought it might be the Imuran which I stopped last week. Monday night it was so bad, I laid in bed with an ice pack on my head and couldn't move. Tuesday was awful. By Wednesday, I couldn't even get out of bed. I called in and told my boss there was no why I could even drive to the office.

I finally got a hold of my new rheumy doc, the one I liked so much after 3 phone calls at 1pm yesterday. She was less than pleasant to me. She said that my ra antibody is negative and that she doesn't believe I have RA. She said I probably have Crohn's. She wouldn't listen to me when I tried to explain that I've always been C until they put me on all these drugs. She said to me "I can't help you." She said to go to a gastro person. I was so caught off guard that I couldn't ask the proper questions and she was very short with me. I hung up the phone crying.

I was so weak, I couldn't get off the couch. I called her office back trying to get my questions answered and the receptionist got an attitude with me saying you will have to ask the dr these things but I can't talk to her until my appt at the end of the month. The receptionist did call me back 2 hours later and said I'm supposed to continue taking all my medications even though I don't have ra.

I got a hold of my internist this morning. She said she doubts I have crohn's because there were no white blood cells in my stool sample and the fact that the d didn't start until after I started all these horrible drugs.

She hasn't a clue whats wrong with me either. We agreed that I would taper off the steroids and I stopped all the other medications. I've been taking over 20 pills a day. I'm going to stay on the zoloft but pretty much stop everything else.

I just can't believe they haven't any idea whats wrong with me now. I'm thinking I might try to call the University of Mi and see about getting an appt there. I just don't know how much more I can take. Why can't they tell me whats wrong???????????

--------------------
Taking it one day at a time.....

Print Remind Me Notify Moderator