Thats the million dollar question, which is worse, the permanent damage from the ra or being deathly ill from the treatments!
I think the placquenil and prednisone will hopefully keep the ra to a dull roar until I can start the humira, which will hopefully stop the progression of the ra. Obviously, the imuran has changed my immune system and red blood cells because of the blood work results. I have read it takes 3 months for those changes to be reversed so I'm hoping the ra will still at bay for a little while and that the nasty side effects fade quickly.
If I start to flare bad, I'll be sure to call the rheumy but I just can't go on barfing and having D all day. The headache, the sinus pain, the weakness, the foggy brain, the just SICK feeling has got to go!! I'm not talking a little weakness, I'm talking can't lift a glass of water, haven't blown dry my hair in 2 weeks, can't carry my puppys create, cant pick up a basket of laundry-I can hardly lift my arms over myhead to put my hair in a ponytail. I'm talking 16 pounds of weight loss in 6 weeks DESPITE being on steroids. I look like walking death.
I'd love to take some time off. The other offices are each 2 hours away and none of the girls are willing to drive that far to cover me. We would need an experienced optician and the temp agency for that charges $25 an hour, thats more than I make. So even if I could afford to lose my pay check, which I can't as hubbys business is down right now-it would still cost my boss a lot more to have a temp cover. Its the one downfall of my job. The upsides are that I work good hours, m-f 10-6 and get to bring my dogs to work everyday! Not to mention its a pretty gravy job all things considered OTHER than the problem of time off!
-------------------- Taking it one day at a time.....
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