Oh honey, I feel so bad for you. And this sucks so royally I don't know how to say it.
I've been getting a little bit of info off the girls on www.butyoudontlooksick.com and it seems like almost all of the connective tissue diseases have problems with fertility and pg associated with them. I can't believe they've only just worked this out for you!
If you want to try and find answers, the girls on that board are amazing. Stef actually offered to email you if you would like - it might be easier. If you want any help with stuff like this, I'll do anything I can, just let me know.
This is awful. I'm crying with you sweetheart, I think we all are. Anything I can do, just let me know.