Irritable Bowel Syndrome Message Boards | Re: Has anyone else had this?

Hi Steph,
I've seen your recent posts and I know it's crappy what you're going through right now - it sounds awful! But I'm hoping I can write something to encourage you. It's good that the doctors are going to do the colonoscopy and they are taking measures to make sure they get it right! I know it is a scarry prospect to be diagnosed with IBD (crons or colitis) - I really know - I remember being scarred to death that a doctor would tell me I have crohns and what would I do and what would it mean and I would rather be in pain and ignorant about it (I just didn't want to deal with the reality). But really, a diagnosis will get things going for you. I sometimes really feel sorry for so many of our fellow sufferers on the site who are still stuck on the IBS diagnosis and have awful symptoms but doctors don't take them seriously. Almost any doctor will take you seriously once you are diagnosed with crohns or colitis. It's sad that it takes such a labeling process and that others don't get the care they deserve - but this diagnosis could be helpful for you. Especially if asacol has really helped you. I know it will be hard to go off of it - but asacol is a really easy drug - you've probably noticed that you don't have too many side effects from it. If you can feel better with just taking asacol than you may be able to manage the disease quiet effectively and you could even achieve that wonderful goal - that is still elusive for so many of us - called remission - yes you could feel normal except that you swallow 20 pills a day - the pills could actually keep you normal. What a concept! But really - it's good that the doctors are doing tests to get the diagnosis and treat the real problem. Please let me know how things go for you - Steph, I've been through this diagnosis thing and I'd be happy to answer your questions and to sympathize. On the dizziness specifically - I'm not sure about this, but it sounds like you might be having problems with anemia. Have the doctors checked your hemocrit levels and your iron levels? Try a B12 supplement - the highest you can possibly find - and if you can manage it - eat some spinich - but not if it will give you D, that probably wouldn't be worth it. But mention this to your doctor if it continues. Keep us updated - and (as so many people have said to me) I promise you Steph, it does get better!
Min

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