Hi Casey!
I'm Nel. I just had to reply to your message, because I've encountered the same thing with doctors who don't know the difference between fibers. I have gotten so much bad advice from doctors durring my 21 year ordeal with IBS-D I pretty much gave up 4 years ago, and have been following a modified diet similar to Heather's ever since. I just had no idea how ill all those tests (upper GIs, lower GIs, barium enemas, sigmoidoscopy, colonoscopies, etc.) were making me feel. Other Bad Things doctors have recommended to me include baking soda with water, recommending running, recommending bedrest (was bedridden from ages 20-22), and recommending taking one-a-day vitamins (hair fell out, IBS was worse than ever). All the while "running more tests." The last straw was recommending I reduce my stress. What a novel idea!
I've been modifying my diet in the last 5 years, and never felt better. And in that time, I only go to a doctor for regular checkups. Going to doctors only heightens my stress, so it turns out that that was easily remedied.
I can't tolerate a lot of soluable fiber, because the weight of it in my stomach is too much, and it's a dangerous game to play trying to regulate the frequency of my attacks with fiber and loperamide. But some tricks I do use:
Only drink lukewarm water, never cold
Wait an hour after getting up in the morning before eating or drinking
I eat small meals, but make sure to get enough food so that when I'm hungry I don't dive for a trigger food out of starvation
...and others like "Dinner and a movie" is "Movie, then dinner."
Anyway, sorry for my rant. I just saw the doc this morning and he confused IBS with Crones, then recommended me reducing my stress.
Thanks for your postings. It helps to know that I'm not alone.
~nel~
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Re: contradictory advice b/w Heather and GI doc--I'm confused
