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Re: Couldn't find a proper place to post this - it's been 3yrs, will be a long post
      06/07/06 03:02 PM
Sommer

Reged: 02/09/04
Posts: 283
Loc: Phoenix, Arizona USA

Hi, thanks for the reply and it's nice to see you around still as well. That's for your advice and opinions. I think I've just gotten fed up - after over five years of trying my best with what I had, I've only had minimal relief. Luckily I very rarely have D, by rarely I mean twice a year.

I finally talked to a doc who listened to me and prescribed me Zelnorm 6mgs twice a day before meals. It took maybe a month or less before I noticed that not only were my BMs more common, but they were softer and easier to move. It was quite a relief. I still get constipated now and then, but not as often. Only recently has the IBS decided to freak out on me.

I always thought the same thing - those hydrocolonblahblah things, although usually water and a natural lubricant, can still upset the system, even if it does flush out toxins. It was always a mixed feeing for me.

Since becoming unemployed and going on medicaid and disability, I've had to switch docs. My old doc didn't believe in the Fibro/CFS thing, but he did pay attention to me otherwise. This new doc with my new insurance is still waiting on my old med recs before he tells me what he wants me to do. He's fairly confident a colonoscopy isn't necessary, but he also seemed quite convinced that I wasn't going to let him get away with not giving me a referral. He's a new doc, but I feel comfortable with him, he seems like he wants to help and that he understands what I'm telling him. I think he wanted to stop practicing medicine when he saw the list of problems I check-marked on the paperwork though! LOL

The reason I had asked doc #1 about Fibro and CFS is b/c I did research it, and everything screamed Fibro and CFS. There's nothing else left right now to explain why I'm having so many problems. Doc #1 said that even tho he didn't really find enough proof about Fibro and CFS to feel comfortable helping me, he told me to go to a rheumatologist. But by that time, I lost my insurance. Doc #2 came into the picture and I have to have a referral for everything. We have to start all over now, he's gonna check all my old records and find out where he wants to start from. The last thing we had done was a lumbar x-ra which hurt so badly it scared me. I hadn't been in that kind of pain before in my life and I thought something was wrong. Of course, now I'm just waiting for the results.

What scares me the most and frustrates me the most is that so many tests I've had have come back either great or in the words of my nurse 'immaculate' or 'brilliant'. I'm extremely healthy apparently. So why do I feel like I'm dying every day? I'm on various meds right now. I'd rather go for natural if possible. I don't like side effects and med interactions.

I will try to afford that papaya idea, do I just chop it up with the skin, put it in with some soy milk and honey and ice? Do papayas have pits??

I guess all that's left for me is to find some way to convince my five thousand docs that they have to figure something out. I think there are only a small handful of tests I haven't had yet. I guess my situation in total, not just the IBS, but everything added up is just so overwhelming I can't handle it anymore. Sorry, I write really long posts. It's just upsetting and irritating and this place is the only place I know of where ppl understand what I'm talking about and I have to vent, a lot. Thanks again Han. Side note - any ideas on how I can put up a new picture? I have one saved on my desktop but I can't figure out how to post it, which is weird, I figured it out before, lol.

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XOXO from lil' ol' me. (IBS-C, mood disorders, etc., etc.)

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Entire thread
* Couldn't find a proper place to post this - it's been 3yrs, will be a long post
Sommer
06/07/06 01:05 PM
* Re: Couldn't find a proper place to post this - it's been 3yrs, will be a long post
kshsmom
06/07/06 04:08 PM
* Re: Couldn't find a proper place to post this - it's been 3yrs, will be a long post
Yoda (formerly Hans)
06/07/06 01:32 PM
* Re: Couldn't find a proper place to post this - it's been 3yrs, will be a long post
Sommer
06/07/06 03:02 PM
* Re: Sommer
Yoda (formerly Hans)
06/07/06 04:10 PM

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