Thank you for taking the time to share all this! It was very interesting to read about anothers journey through this "syndrome". Were both your blood work (including gliadin) and endoscopy negative?
I can totally relate and empathize with your experiences with doctors. I think they like to throw a lot of people with GI problems (that they themselves are not able to help) into the IBS pot! They feel better because they have given a diagnosis and they think we are naive enough to passively accept their diagnosis. I know I put to much trust in what doctors say...even when they all say different things! That's why I am so confused. Who do I believe? Who do I trust? When do I just accept that it is sever IBS? Or do I still worry that it's my nonfunctioning gallbladder and some gluten antibodies? They say the fact that my gallbladder is only functioning at 4% has nothing to do with my pain. This may be true because I did read that people who are low weight and have had a history of anorexia tend to have their gallbladders slow down and that their functioning improves again as the weight normalizes. so, nobody is too anxious to remove mine. Most of them refuse...but I did find one that will remove it if I want. How the heck am I suppose to make that medical decision? Isn't that suppose to be their job? I never don't have the vomitting that you had....and I am still able to eat solid food...so maybe my GB really is not a factor? 
I have gotten all the remarks as you..."I can't help you"...learn to live with it....you'll most likely always be in pain....I refuse to even work with you because you need to go to Mayo, eat what doesn't hurt and don't eat what does hurt....eat whatever I want if I'm gonna be in pain anyhow so I might as well enjoy food)" Many doctors have sent me home in tears and told me to go see a shrink.
And they can't make up their mind on the gluten...whether it is safe or not for me. Unlike you, going GF has not helped me. I'm glad you are finding relief! That is wonderful...and I would happily continue to eat GF if it helped. (BTW, you are one of the few GI people I have "met" that suffer from C instead of D.
Yep, had a small bowel series follow through. Delicious drink, wasn't it. (gack). Mine took forever, but I did finish it (normal results).
I thought Lays were GF. The company assured me they were when I called them. They said the seasoning and modified corn starch did not contain gluten, and they are my list of "mainstream GF products"...but maybe you can't trust it. I eat Kettle Chips now, but prefer the taste and price of lays better!
I just don't know how much of my pain is self induced by my stress and anxiety over trying to find answers and relief...and how much is real? Is the gluten intolerance and gallbladder dyskinesia real...or is my anxiety over the test results making me sicker than I really am? Is my obsession with researching and reading and spending/(wasting?) so many hours of my day/night causing me the pain and preventing me from ever becoming well? Where's the line between obsession and taking control of your health because no doctor can be bothered?
BTW, what gluten free bread do you use? And what is ck that you are eating? Do you think that you even have IBS? Do you follow this IBS diet? Or do you think you are basically GI?
Keep me updated on your progress with the GF diet. I wish you the best! BTW, are you done with doctors forever? 
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Re: How did you decide you were glutent intolerant?
