Hi, Pauline, and welcome! I don't have much to add because you've received so many excellent responses! (I'm always amazed at how supportive and smart the folks on these boards are!) I just wanted to say I'm sorry your daughter is suffering so much. Abdominal pain/cramping has also been one of my major symptoms and after a few months of following the diet I saw a major reduction in the frequency and severity of this pain.
Your daughter is lucky to have a doctor who is taking her symptoms seriously and a mother who's doing all she can to help her out. I hope your daughter gets some answers and starts feeling better soon!